Edward Abrahams, PhD | President
Personalized Medicine Coalition
Edward Abrahams, Ph.D., is president of the Personalized Medicine Coalition (PMC). Representing scientists, patients, providers and payers, PMC promotes the understanding and adoption of personalized medicine concepts, services and products for the benefit of patients and the health system. It has grown from its original 18 founding members in 2004 to over 200 today.
Previously Dr. Abrahams was Executive Director of the Pennsylvania Biotechnology Association, where he spearheaded the successful effort that led to the Commonwealth of Pennsylvania’s investment of $200 million to commercialize biotechnology in the state. Earlier he had been Assistant Vice President for Federal Relations at the University of Pennsylvania and held a senior administrative position at Brown University.
Dr. Abrahams worked for seven years for the U.S. Congress, including as a legislative assistant to Senator Lloyd Bentsen, an economist for the Joint Economic Committee under the chairmanship of Representative Lee Hamilton, and as a AAAS Congressional Fellow for the House Committee on the Interior.
The author of numerous essays, Dr. Abrahams serves as senior editor of Personalized Medicine and has also taught history and public policy at Brown University and the University of Pennsylvania.
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Daniel C. Barth-Jones, MPH, PhD | Assistant Professor of Clinical Epidemiology
Mailman School of Public Health at Columbia University
Adjunct Assistant Professor and Epidemiologist
Wayne State University School of Medicine
Dr. Daniel C. Barth-Jones is an Assistant Professor of Clinical Epidemiology at the Mailman School of Public Health at Columbia University in New York and an Adjunct Assistant Professor and Epidemiologist at the Wayne State University School of Medicine in Detroit, Michigan. Dr. Barth-Jones received both his Master of Public Health and Ph.D. degree in Epidemiology from the University of Michigan. His work in the arena of statistical disclosure control focuses on the importance of properly balancing two vital public policy goals: effectively protecting individual’s privacy and preserving the scientific accuracy of statistical and geo-statistical analyses conducted with de-identified health data.
He has authored several peer-reviewed publications and a book chapter on statistical disclosure assessment/control and has given numerous presentations on statistical disclosure limitation for state and federal agencies, healthcare information organizations, healthcare and pharmaceutical companies, research and professional societies, and within academia. His research agenda also includes topics in the areas of HIV and infectious disease epidemic modeling, and health economic evaluations of public health policies for vaccination and preventative intervention programs.Contact information for Dr. Barth-Jones is available at:http://www.mailman.columbia.edu/our-faculty/profile?uni=db2431
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Andrew Blumberg, PhD | Assistant Professor of Mathematics
University of Texas at Austin
I'm an assistant professor of mathematics at UT-Austin. My primary research focus is algebraic topology, but I've worked on the design of practical privacy-preserving systems for locational privacy and have extensive experience as a software engineer. I've become involved in technology questions surrounding electronic health records more recently, as part of work with PPR.
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Corinne Carey, JD | Senior Public Policy Counsel
New York Civil Liberties Union
Prior to joining the NYCLU, Corinne Carey was a researcher with the U.S. Program at Human Rights Watch, where she produced reports and engaged in advocacy on domestic human rights issues including the rights of people with criminal records, sex offender registration and community notification laws, and the evacuation of correctional facilities during Hurricane Katrina.
Carey graduated summa cum laude from the State University of New York at Buffalo School of Law. She began her legal career with a fellowship from the Open Society Institute as the founder and director of the Harm Reduction Law Project, based in the Lower East Side Harm Reduction Program in New York City. She provided direct legal services to drug users in harm reduction programs throughout the city.
A longtime drug law reform and harm reduction advocate, Carey was a founding member of Prevention Point Philadelphia, that city's first needle exchange program. She serves on the board of directors of National Advocates for Pregnant Women, and has spoken about the rights of drug users to local, national and international audiences. She has also taught courses in law and urban problems and civil rights and civil liberties at New York University and Brooklyn College.
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Barry Chaiken, MD
| Former Chairman of the Board of the HIMSS
Imprivata
Barry P. Chaiken, MD, MPH, FHIMSS has over 20 years experience in healthcare information technology, patient safety, clinical transformation, and public health. During his career, he worked with the National Institutes of Health, U.K’s. National Health Service, McKesson, and BearingPoint.
Over the past 15 years Chaiken provided expertise in quality and patient safety to provider and payor organizations helping them utilize information technology to improve clinical and administrative activities. He has served as guest lecturer and consultant on topics including patient safety, clinician adoption of information technology, quality improvement and the patient centered medical home.
Chaiken is board certified in General Preventive Medicine and Public Health as well as Health Care Quality Management. He is currently Chief Medical Officer at DocsNetwork, Ltd. where he provides thought leadership and offers clients his expertise in strategic planning, clinical transformation, and quality improvement. He has delivered more than 60 CME lectures, and is currently on the editorial board of the Journal of Patient Safety and the journal of Patient Safety and Quality Healthcare. Chaiken writes a column on technology and quality for the journal Patient Safety and Quality Health Care.
Chaiken received his medical degree from SUNY Downstate Medical Center, NYC, his masters in public health degree in health services administration from the Harvard School of Public Health and his bachelors of arts degree in psychology from the University at Albany. He acquired his specialty training from the Centers for Disease Control as an Epidemic Intelligence Service Officer and from the New Jersey State Department of Health as a preventive medicine resident. He served as a Board member (2006-2010), Board Liaison to HIMSS Europe (2006-2009), and Board Chair (2009-2010), and continues his involvement as a Fellow of the Health Information Management and Systems Society (HIMSS). |
H. Westley Clark, MD
| Director
Center for Substance Abuse Treatment, SAMHSA
As director of the Center for Substance Abuse Treatment under the Substance Abuse and Mental Health Services Administration, U.S. Department of Health and Human Services, Dr. H. Westley Clark leads the agency's efforts to provide effective and accessible treatment to all Americans with addictive disorders. Dr. Clark's areas of expertise include substance abuse treatment, methadone maintenance, pain management, dual diagnosis, psychopharmacology, anger management, and medical and legal issues. He is also a noted author, clinician, teacher and spokesperson in the field of addiction and forensic psychiatry.
Dr. Clark has received numerous awards for his contribution to the field of substance abuse treatment, including the 2008 President of the United States of America, Rank of Distinguished Executive in the Senior Executive Service Award in recognition of his personal commitment to excellence in government and public service. In 2003, he was honored with Presidential Rank of Meritorious Executive Award for his sustained superior accomplishments in management of programs of the United States Government and for noteworthy achievement of quality and efficiency in the public service. Dr. Clark was also awarded the 2008 John P. McGovern Award from the American Society of Addiction Medicine for his contributions toward increased understanding of the relationship between addiction and society.
Dr. Clark received his medical degree from the University of Michigan and his law degree from Harvard University Law School. Dr. Clark received his board certification from the American Board of Psychiatry and Neurology in psychiatry and sub-specialty certifications in addiction psychiatry. Dr. Clark is licensed to practice medicine in California, Maryland, Massachusetts and Michigan. He is also a member of the Washington, D.C., Bar Association.
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Lillie Coney | Associate Director
Electronic Privacy Information Center (EPIC)
Lillie Coney is associate director of the Electronic Privacy Information Center (EPIC) in Washington, D.C., where her work encompasses forecast and analysis of emerging technology and government policy and its implications for privacy. She coordinates EPIC’s coalition efforts, which include the Privacy Coalition and The Public Voice. She has testified before the House Judiciary Committee on Privacy and Cybercrime Enforcement, and the House Committee on Homeland Security on the topic of watch lists. She assesses privacy implications of emerging technologies and new uses for existing technology's. In 2009, House Speaker Nancy Pelosi appointed Lillie to the Election Assistance Commission Board of Advisors. Lillie wrote the chapter “Mobilize Underrepresented Voters” in The New York Times bestseller, 50 Ways to Love Your Country. She co-chaired the 2011 Computers Freedom and Privacy Conference: the Future is Now, and chaired the Public Voice Conferences in 2010 and 2011.
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Ann Freeman Cook, PhD | Research Professor in the Department of Psychology, and Director of the National Rural Bioethics Project
The University of Montana
Ann Freeman Cook, PhD., is a Research Professor in the Department of Psychology, and Director of the National Rural Bioethics Project at The University of Montana. Dr. Cook serves as an ethics consultant and has been the principal investigator for empirical, interdisciplinary ethics research studies that have been supported by the Culpeper/Rockefeller Foundation, the Greenwall Foundation, the Agency for Healthcare Research and Quality, the National Institute for Environmental Health Sciences, the National Science Foundation, and the National Institute of Health Human Genome Research Institute (NIH/NHGRI). Her studies have focused on healthcare ethics, environmental ethics, patient safety, quality improvement, research integrity, informed consent, and protection of human subjects who participate in clinical trial research. Dr. Cook has served as a reviewer on NIH Scientific Review Panels and study sections as well as for health and ethics journals. She also serves an ethics consultant for collaborative research and program development. Dr. Cook and her research partner, Dr. Hoas have written numerous articles that focus on the ethical challenges that develop in rural healthcare settings. Their studies on ethics, patient safety, and quality care have supported research collaborations within the University of Montana, with other universities, and with rural communities.
Dr. Cook’s current body of research is exploring the alignment of understanding among IRB members, investigators, and research participants when approving, conducting, or participating in clinical trial research in more rural areas of the US. Findings from these studies shed light on what key stakeholders need to know about one another when considering participation in biomedical research, what issues may undermine protection of human subjects, and how stakeholders view evolving issues like disclosure of researcher compensation, disclosure of research results, conflict of interest, and research integrity.
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Andrew Dillon, PhD | Dean
University of Texas at Austin School of Information
Andrew has been an active researcher of the human response to information technology for the last 20 years, graduating from the National University of Ireland (M.A. first class) and Loughborough University of Technology before being appointed Research Fellow at the Human Sciences & Advanced Technology Research Institute in the UK. He moved to Indiana University in 1994 where, amongst other duties, he developed and served as the founding Director of the Masters in Human- Computer Interaction at the School of Informatics. He joined the University of Texas at Austin in January 2002 as Dean and Professor of the School of Information. Defying professional categorization, he has held appointments in departments or schools of cognitive science, computer science, psychology, instructional systems technology, management information systems, library and information science, and informatics. Having published more than 100 articles and books on various aspects of human information behavior and design, Andrew serves or has served on the editorial boards of many leading journals such as the International Journal of Human-Computer Studies, Interacting with Computers, the Journal of Documentation, and the Journal of the American Society for Information Science and Technology. He has contributed invited entries for the Macmillan Encyclopedia of Cognitive Science, the International Encyclopedia of Ergonomics & Human Factors and the Encyclopedia of Library and Information Science and has received research funding from NSF, Microsoft, and CEC among others. He advocates a view of information science as a means of accelerating discovery and shaping a more democratic world.
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Richard A. Gephardt, JD | President & CEO
Gephardt Government Affairs
Richard A. Gephardt is President and CEO of Gephardt Government Affairs. He provides strategic advice to clients on issues before the House, Senate and Executive Branch in the federal government. Mr. Gephardt has brought successful resolution for clients on issues related to negotiations, crisis management, and strategic communications. He represents a broad array of Fortune 100 clients on Capitol Hill and before the Administration, in addition to serving as public spokesperson for clients on coalitions to bring about policy solutions to healthcare reform and climate change.
Mr. Gephardt served for 28 years in the United States House of Representatives from 1976 to 2004, representing Missouri’s 3rd Congressional District, home to his birthplace St. Louis. In his role as Leader, Mr. Gephardt emerged as one of the leading strategists of the Democratic Party’s platform and chief architect to landmark reforms ranging from healthcare, pensions, education, energy independence and trade policy. In his first year in Congress, he was appointed to both the House Ways & Means and Budget Committees. He was elected to serve as House Democratic Leader for more than 14 years, as House Majority Leader from 1989 to 1995 and Minority Leader from 1995 to 2003.
Mr. Gephardt was a colleague in the House to 49 currently serving U.S. Senators and members of the Executive Branch. He enjoys strong bipartisan relationships in the House of Representatives, serves as a trusted advisor to senior officials in the Administration and on Capitol Hill, and has counseled numerous CEOs during negotiations with labor. He has been featured in national publications, including The New York Times, The Wall Street Journal, The Washington Post, National Journal, Roll Call, The Hill and Time.
Widely known for his advocacy for international human rights, Mr. Gephardt currently serves as Chairman of the National Endowment for Democracy, a private, nonprofit organization that endeavors to strengthen democratic institutions around the world through nongovernmental efforts. He is a member of The Council on Foreign Relations and an Advisory Board member to the International Conservation Caucus Foundation. He also serves as Advisory Board chairman at the Richard A. Gephardt Institute for Public Service at Washington University in St. Louis, and the Library and Research Center of the Missouri History Museum in St. Louis recently opened The Richard A. Gephardt Collection to represent the life and career of his tenure in Congress. Mr. Gephardt began his career in public service in 1968 as a precinct captain to St. Louis’ 14th ward.
From 1971 to 1976, he served as Alderman for the city’s 14th ward. In 1976, he was elected to the U.S. Congress, succeeding 24-year incumbent Leonor Sullivan.
Mr. Gephardt earned a bachelor’s degree in Science from Northwestern University in 1962 and juris doctorate from the University of Michigan Law School in 1965. He has been married to his wife Jane for 38 years and they have three children, Matt, Chrissy and Kate.
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Mark Frisse, MD
| Accenture Professor of Biomedical Informatics
Vanderbilt University
Director, Regional Informatics
Vanderbilt Center for Better Health
Mark Frisse, MD, MBA, MSc, is a professor of Biomedical Informatics at Vanderbilt University School of Medicine. His academic responsibilities include directing the Vanderbilt Owen Graduate School of Management’s executive-level Masters of Management in Health Care program. Funded through the Agency for Healthcare Quality and Research and the State of Tennessee, he was responsible for the creation, operation, and evaluation of a large health information exchange in Memphis, Tennessee. In this capacity he and his colleagues were among the first to implement many policies developed through the Connecting for Health Common Framework. His current research in privacy and security is funded through the SHARP research program of the Office of the National Coordinator for Health Information Technology.
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Lawrence O. Gostin, JD | Linda D. and Timothy J. O’Neill Professor of Global Health Law; Faculty Director
Center for Law and the Public's Health
Georgetown University Law Center
Lawrence O. Gostin, an internationally acclaimed scholar, is the Linda D. and Timothy J. O’Neill Professor of Global Health Law at the Georgetown University Law Center, where he directs the O’Neill Institute for National and Global Health Law. Prof. Gostin is the Director of the World Health Organization Collaborating Center on Public Health Law and Human Rights. He served as Associate Dean for Research at Georgetown Law, 2004-2008. He is also Professor of Public Health at the Johns Hopkins University and Director of the Center for Law & the Public’s Health at Johns Hopkins and Georgetown Universities.
Prof. Gostin holds a number of international academic professorial appointments. He is Professor of Global Health Law in the Faculty of Law, at the University of Sydney. He is Visiting Professor (Faculty of Medical Sciences) and Research Fellow (Centre for Socio-Legal Studies) at the University of Oxford, United Kingdom. Prof. Gostin is the Claude Leon Foundation Distinguished Scholar and Visiting Professor at the University of Witwatersrand, Johannesburg, South Africa (Nobel Laureate Selection Criteria).
Prof. Gostin serves on the Director-General’s Advisory Committee on Reforming the World Health Organization. In 2007, the WHO Director-General appointed Prof. Gostin to the International Health Regulations (IHR) Roster of Experts and the Expert Advisory Panel on Mental Health.
Prof. Gostin holds numerous editorial appointments in prestigious academic journals throughout the world. His principal position is the Health Law and Ethics Editor, Contributing Writer, and Columnist for the Journal of the American Medical Association.
Prof. Gostin holds three honorary degrees. In 1994, the Chancellor of the State University of New York conferred an Honorary Doctor of Laws Degree. In 2006, Her Majesty Queen Elizabeth II and the Vice Chancellor awarded Cardiff University’s (Wales) highest honor, an Honorary Fellow. In 2007, the Royal Institute of Public Health designated Prof. Gostin as a Fellow of the Royal Society of Public Health (FRSPH).
Prof. Gostin, an elected lifetime Member of the Institute of Medicine/National Academy of Sciences, serves on the Board on Health Sciences Policy, the Human Subjects Review Board, and the Committee on Science, Technology, and Law. He currently chairs the IOM Committee on National Preparation for Mass Disasters, and has chaired Committees on privacy, genomics, and prisoner research. The IOM awarded Prof. Gostin the Adam Yarmolinsky Medal for distinguished service to further its mission of science and health. He received the Public Health Law Association’s Distinguished Lifetime Achievement Award “in recognition of a career devoted to using law to improve the public’s health” presented at the CDC. Internationally, Prof. Gostin received the Rosemary Delbridge Memorial Award from the National Consumer Council (U.K.) for the person “who has most influenced Parliament and government to act for the welfare of society.” He also received the Key to Tohoko University (Japan) for distinguished contributions to human rights in mental health.
Prof. Gostin has led major law reform initiatives in the U.S., including the drafting of the Model Emergency Health Powers Act (MEHPA) to combat bioterrorism and the “Turning Point” Model State Public Health Act. He is also leading a drafting team on developing a Model Public Health Law for the World Health Organization. Prof. Gostin is currently engaged in three major international initiatives on global health governance: (1) a “Framework Convention on Human Services” for the World Bank—a multilateral treaty on the health care professional capacity in poor and middle income countries; (2) a “Framework Convention on Global Health”—a multilateral treaty ensuring “basic survival needs” for the world’s poor; and (3) a Global Plan for Justice—a voluntary global compact to fund essential medicines, basic survival needs, and climate change. He founded the Joint Learning Initiative on National and Global Responsibilities for Health (A Global Partnership for Fundamental Global Health Reform) featured in the World Health Report 2011.
In the United Kingdom, Lawrence Gostin was the Legal Director of the National Association for Mental Health, Director of the National Council of Civil Liberties (the UK equivalent of the ACLU), and a Fellow at Oxford University. He helped draft the current Mental Health Act (England and Wales) and brought several landmark cases before the European Commission and Court of Human Rights.
Prof. Gostin’s latest books are: Public Health Law and Ethics: A Reader (University of California Press, 2nd ed., 2010); Public Health Law: Power, Duty, Restraint (University of California Press, 2nd ed. 2008); Principles of Mental Health Law & Practice (Oxford University Press, 2010). He is currently working on a book for Harvard University Press, entitled: Global Health Law: International Law, Global Institutions, and World Health.
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Adrian Gropper, MD | Principal
HealthURL.com
Dr. Gropper is a pioneer in patient-centered and patient-controlled health records on the Internet. He holds an engineering degree from MIT and an MD form Harvard Medical School. Early work on telemedicine and picture archiving and communications systems (PACS) with Massachusetts General Hospital also introduced him to MIT's Guardian Angel project that many consider the parent of many of today's patient-facing technologies. In 1995, Dr. Gropper founded AMICAS (NAS:AMCS) as the first Web-based radiology PACS and the first to provide direct links to diagnostic imaging in electronic health records.
Dr. Gropper founded MedCommons in 2004 to develop software for image-enabled, patient-centered health records supporting all of a patient's caregivers. Dr. Gropper participated in many early standardization efforts including IHE, HITSP, Liberty Alliance and the Continuity of Care Record steering committee. He also serves on the Massachusetts Health Information Exchange Technology Workgroup, the Massachusetts Medical Society Committee for Information Technology and Markle Foundation panels. Currently he participates as a patient-access advocate in the NwHIN Direct Project and consults on image-enabling patient portals, NwHIN secure messages and electronic health records as well as health information technology in the cloud.
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Jeremy Gruber, JD | President
Council for Responsible Genetics
Jeremy Gruber, JD is the President of the Council for Responsible Genetics, a public policy organization that represents the public interest regarding the social, ethical and environmental implications of developing genetic technologies.
Mr. Gruber is an expert on issues of genetic privacy and discrimination. He has worked for over fifteen years on genetic non-discrimination legislation at the state level; including a landmark privacy law recently passed in California. Mr. Gruber was a leader of the successful effort to pass the Genetic Information Non-Discrimination Act (GINA) and continues to guide GINA policy through regulation, education and enforcement. He is a founder and executive committee member of the Coalition for Genetic Fairness, a group of 500 organizations that advocates for genetic non-discrimination protections on Capitol Hill.
Additionally, Mr. Gruber led the widely publicized and successful campaign to roll back the University of California Berkeley’s “Bring Your Genes to Cal” student genetic testing program; an often cited teaching moment on issues of genomics, science, education and society.
Mr. Gruber is a prolific writer on genetics policy issues ranging from direct-to-consumer genetics to forensic DNA databases and is often consulted by and called to testify before Congress, Federal agencies and state legislatures. He is regularly featured in print, radio and television.
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David W. Hilgers, JD | Partner
Brown McCarroll, L.L.C.
David W. Hilgers is a Partner at Brown McCarroll, L.L.P. and is a member of the firm’s Health Care Law Section. He has practiced law for more than thirty-five years. His primary focus is on health care, corporate, and administrative law. Mr. Hilgers represents healthcare providers, including physicians, dentists, healthcare systems, managed care organizations, long-term care facilities, multi-specialty groups, hospitals, hospital districts, and community mental health and mental retardation centers.
Mr. Hilgers is a member of the American Bar Association’s Health Law Council, served as the 2009-2010 Chair of the Health Law Section, and is the current Chair of the Standing Committee on Continuing Legal Education of the Section Officers Council. He is a regular speaker on issues surrounding the healthcare industry. He was honored in Chicago in November 2004 as one of ten Nightingale’s Healthcare News’ Outstanding Physician Practice Lawyers in the United States. Other honors include Best of Business Attorney, Health Care Law, Austin Business Journal, 2005; “Leaders in their Field,” Healthcare Law, Chambers USA 2005-2010 Guides; and Super Lawyer, Health Care Law, named by Law and Politics Media, Inc. and published in Texas Monthly, 2003-2010. He has been recognized in Best Lawyers in America, 1999-2011; and Texas Lawyer’s The Go-To Guide, Health Law, 2007.
Mr. Hilgers received his Doctor of Jurisprudence, with honors, from The University of Texas School of Law and his Bachelor of Arts, with honors, from Swarthmore College.
He is a member of the Order of the Coif, and was a briefing attorney to the Chief Justice of the Texas Supreme Court.
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Romulo Juarez | Senior Executive
Accenture EMR Transformation Group
Romulo Juarez is a Senior Executive for Accenture’s EMR Transformation Group. He has been providing leadership to the top 150 healthcare organizations and the US Government for twenty years. He has focused expertise in the client partner role managing clients within healthcare across Provider, Payer and Health Information Exchange industries and has led core strategies and implementations supporting Patient Safety and Meaningful Use requirements. Mr. Juarez has been part of some of the world’s largest technology transformation throughout the US and abroad, collectively over $2B dollars. Most recently he has developed several State-wide HIE Strategies, including some of the largest regional HIEs in the Country, He has deep experience with CMS, ONC and working within the Beacon Grant communities. Mr. Juarez is active and provides leadership within HIMSS, specifically the development of HIE and burgeoning HIX market solutions.
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Jim Koenig, CIPP
| Practice Leader, Privacy Strategy & Compliance
Security Co-Leader
HIT Practice PricewaterhouseCoopers, LLP
Jim Koenig is a Director and Leader of PricewaterhouseCoopers’ Privacy and Identity Theft practice. He has an extensive business, technology and legal background, and is a recognized authority on privacy issues impacting healthcare, financial services, direct marketing and technology. Jim provides global privacy and security strategy, compliance and training services focused on ROI-driven solutions that balance the goals of business with respect for consumer privacy. He has provided privacy services to pharmaceutical, health insurance, financial, retail, cable, telecom, car rental, airline and manufacturing companies. His professional activities include: Member of Educational Advisory Board for the International Association of Privacy Professionals, Member of Privacy Council for the Direct Marketing Association, Member of American National Standards Institute (ANSI), Member of Technical Advisory Group (TAG), Member of Technical Management Board’s Task Force on Privacy.
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Robert M. Kolodner, MD
| Former National Coordinator for Health IT
Health & Human Services
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Andrew W. Litt, MD
| Chief Medical Officer
Dell Healthcare & Life Sciences
Dr. Andrew W. Litt is Chief Medical Officer for Dell’s division of Healthcare and Life Sciences.He is responsible for providing strategic insight to Dell’s healthcare solutions to help healthcare organizations, medical professionals and patients realize the benefits of information-enabled healthcare. Dr. Litt and Dell help global healthcare providers achieve an environment that is interconnected, efficient and patient-focused.
Prior to his current role, Dr. Litt was the principal of Litt Healthcare Ventures a consulting firm for private equity firms and others seeking to invest in healthcare. Before that he was Executive Vice President and Vice Dean, Chief of Staff of the NYU Langone Medical Center and coordinated theactivities and strategy across the NYU School of Medicine and the NYU Hospital Center. During his tenure as EVP, he oversaw the turnaround of the medical center’s finances, stewarded a new strategic plan and coordinated the development of a new $1.5 billion clinical tower, the implementation of the Epic electronic health record system and other major projects.
Dr. Litt has served on two outside Boards of Directors. He helped found CareCore National, a company that provides utilization and quality management programs for managed care company clients. He also was a founding board member of Imaging on Call, a company that provides emergency “off-hours” radiology interpretations for hospitals and radiology practices via the internet.
Dr. Litt is a neuroradiologist with a recognized expertise in neurovascular imaging. He was a magna cum laude graduate of Brown University where he was elected a member of Phi Beta Kappa. He received his Doctor of Medicine degree from NYU and then completed internship, residency, andfellowship there. He is a member of NYU School of Medicine’s Alpha Omega Alpha honor society.
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Kurt J. Long
| Founder & Chair
FairWarning®
Kurt Long is the Founder and CEO of FairWarning, Inc., the inventor and global leader in privacy breach detection solutions for electronic health records. Mr. Long founded FairWarning® in 2005 and has led the company to 3,000% growth to date. Under Long’s leadership, the company has been profitable since 2008. FairWarning® customers represent over 800 hospitals and 2,500 clinics across the United States, Canada, the United Kingdom and France. The company is headquartered in Clearwater, Florida, with offices in London, England and Paris, France. FairWarning® anticipates continued growth and profitability.
In 1995, Mr. Long founded and subsequently served as CEO of OpenNetwork Technologies a leader in web single sign on and identity management software solutions. As CEO, Mr. Long led OpenNetwork to over 2,000% growth with customers across the United States, United Kingdom, Europe and Australia. In support of OpenNetwork’s growth, Mr. Long raised capital with tier-1 venture capitalists and subsequently served as CEO and Chairman of the Board of Directors for OpenNetwork. In 2005, OpenNetwork was acquired by BMC Software of Houston, Texas which is one of the world’s largest software companies.
At the outset of his career, Mr. Long held positions of growing responsibility with Lockheed Space Operations at Kennedy Space Center and IBM. Mr. Long received a Bachelor's degree in Business from the University of Florida graduating with High Honors. Kurt also received a Master's degree in Mathematics, Theoretical Computer Science from the University of South Florida, graduating with Honors. Mr. Long is a recognized industry expert in the “AAA” security industry (Authentication, Authorization, Audit) and has authored dozens of published articles on the topic.
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Deven McGraw, JD
| Director of the Health Privacy Project
Center for Democracy & Technology
Deven McGraw is the Director of the Health Privacy Project at CDT. The Project is focused on developing and promoting workable privacy and security protections for electronic personal health information.
Ms. McGraw is active in efforts to advance the adoption and implementation of health information technology and electronic health information exchange to improve health care. She was one of three persons appointed by Kathleen Sebelius, the Secretary of the U.S. Department of Health & Human Services (HHS), to serve on the Health Information Technology (HIT) Policy Committee, a federal advisory committee established in the American Recovery and Reinvestment Act of 2009. She also served on two key workgroups of the American Health Information Community (AHIC), the federal advisory body established by HHS in the Bush Administration to develop recommendations on how to facilitate use of health information technology to improve health. Specifically, she co-chaired the Confidentiality, Privacy and Security Workgroup and was a member of the Personalized Health Care Workgroup. She also served on the Policy Steering Committee of the eHealth Initiative and now serves on its Leadership Committee. She is also on the Steering Group of the Markle Foundation's Connecting for Health multi-stakeholder initiative.
Ms. McGraw has a strong background in health care policy. Prior to joining CDT, Ms. McGraw was the Chief Operating Officer of the National Partnership for Women & Families, providing strategic direction and oversight for all of the organization's core program areas, including the promotion of initiatives to improve health care quality. Ms. McGraw also was an associate in the public policy group at Patton Boggs, LLP and in the health care group at Ropes & Gray. She also served as Deputy Legal Counsel to the Governor of Massachusetts and taught in the Federal Legislation Clinic at the Georgetown University Law Center.
Ms. McGraw graduated magna cum laude from the University of Maryland. She earned her J.D., magna cum laude, and her L.L.M. from Georgetown University Law Center and was Executive Editor of the Georgetown Law Journal. She also has a Master of Public Health from Johns Hopkins School of Hygiene and Public Health.
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Fausto Meza, MD, MPA
| Medical Director, Chief Medical & Information Officer
Doctors Hospital at Renaissance
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Jennifer Ellen Miller, PhD (cand.)
| Founder & Executive Director
Bioethics International
Jennifer Miller is the Executive Director of Bioethics International (BEI) and its initiative the World Council for Ethical Standards in Healthcare (WCES) which she founded in 2005. A physicist and bioethicist by training, Miller has interests in the ethics of biomedical research and development (R&D), interactions between pharmaceutical companies and healthcare providers, the publishing and communication of clinical trial data, access to care, and disaster preparedness.
She serves on Putnam Hospital Center’s ethics committee in New York, and was a steering committee member of the Taskforce for Pediatric Mass Critical Care under the US Centers for Disease Control and Prevention (CDC) and on the American Medical Association’s National Disaster Life Support Education Consortium. Previously she served as a special consultant to the United Nations ECOSOC (organ facilitating international cooperation on standards-making and problem-solving in economic and social issues) and as an advisor on the Association of Schools of Public Health’s Preparedness and Response Core Competency Development Project.
Miller was awarded a Susan G. Komen Foundation grant to study ethical standards in biomedical R&D, and serves as a fellow in the Global Healthcare Innovation Management Center at Fordham University, and as Course Co-Director for Columbia University's Bioethical Cross-cultural Educational Program. In 2010 she co-chaired the Open Hearts Open Minds and Fair-minded Words Conference at Princeton University, and directed the Biotechnology Industry Organization’s ethics panel on responsible research and development for the 2009 International BIO Convention. In 2008 she co-chaired the United Nations affiliate bioethics conference on procreative beneficence, conscientious objections, and R&D ethics.
Miller is also authoring an online publication series for the US Chamber of Commerce’s BCLC and a chapter on ‘Corruption’ for the Compendium and Atlas of Global Bioethics. She has published select journal articles and her expertise have been featured in both the domestic and foreign press including on Fox News, CBS News, AP News and the cover of Science Magazine’s Career section.
Miller received a B.S. in Physics from Fordham University in New York, a Licentiate in Bioethics (EU Masters), and is a Doctoral candidate in Bioethics at Regina Apostolorum in Italy. She is proficient in the English, Spanish and Italian languages.
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Maneesha Mithal
| Associate Director
Division of Privacy and Identity Protection
Federal Trade Commission, Bureau of Consumer Protection
Maneesha Mithal is the Associate Director of the Federal Trade Commission(s Division of Privacy and Identity Protection. In this capacity, she supervises work in the area of data security, identity theft, credit reporting, behavioral advertising, and general privacy. She has held numerous positions at the Federal Trade Commission, including Chief of Staff of the Bureau of Consumer Protection and Assistant Director of the International Division of Consumer Protection. Prior to joining the Federal Trade Commission in 1999, Ms. Mithal was an attorney at the Washington law firm of Covington & Burling, where she practiced in the commercial litigation, international litigation, and legislative areas. Ms. Mithal earned her law degree from the Georgetown University Law Center and her undergraduate degree from Georgetown University.
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Pablo Molina
| Associate Vice President of Information Technology & Campus Chief Information Officer
Georgetown University
Pablo Molina has been associate vice president for information technology since 2007 and campus chief information officer since 2000 at Georgetown University. Prior to that, he worked as director of information technology for the University of Pennsylvania Law School, lecturer/director of information systems for Washington University in Saint Louis School of Law, and senior lecturer for the University of Missouri in Saint Louis Business School. Before his career in academia, he was MIS manager at the Saint Louis Zoo. Prior to that, he created and managed a technology company in Madrid, where he also served as editor in chief of computer magazines, authored several books on technology, and taught information technology at the Escuela de Hacienda Publica.
Pablo has Bachelor’s and Master’s degrees from Saint Louis University, has done graduate coursework at the University of Pennsylvania and Washington University in Saint Louis, and is pursuing a Doctorate degree at Georgetown University. He is a Microsoft Certified Systems Engineer, a Certified Novell Engineer, and a Certified Information Systems Security Professional.
He regularly speaks at conferences on technology in law and higher education, such as Computer Assisted Legal Instruction, American Bar Association, Bricks and Bytes, American Association of Law Schools, American Association of Law Libraries, and EDUCAUSE. He is the recipient of the 2001 Excellence in Service CALI Award. Pablo serves on national higher education committees such as the Facilities Committee of the ABA’s Legal Education and Admissions to the Bar Section and served recently as chair of the EDUCAUSE’s Evolving Technologies Committee. In 2001, Pablo Molina created the Law CIO Group, a group of information officers from the top law schools in the United States and the United Kingdom. He was the recipient of the 2006 CIO Magazine Ones to Watch Award and the Standout Achievement Award as Innovator and was recognized in 2007 as one of the Top 40 Under 40 IT Innovators by ComputerWorld. He was nominated for the Mid-Atlantic Information Security Executive of the Year and the National Information Security Executive of the Year awards in 2007.
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Scott Monteith, MD
| Physician & Medical Informaticist
Michigan State University
Dr. Scott Monteith is a graduate of the University of Michigan and Michigan State University. He was chief resident in his psychiatric residency, is board-certified in psychiatry, and a Fellow of the American Psychiatric Association. He is a Clinical Assistant Professor in the departments of Psychiatry and Family Medicine at Michigan State University, has worked with his local community mental health center for nearly 20 years, and is a founder of Behavioral Medicine Associates, PLLC.
Dr. Monteith's interest in health information technology (HIT) spans 23 years. He is a CCHIT Juror, was appointed to three consecutive terms by Michigan's Governor Granholm to the Controlled Substances Advisory Commission which oversees the Michigan Automated Prescription System, was a member of the first Business Operations workgroup of the Michigan Health Information Network, has consulted in the area of medical malpractice risk management as it relates to HIT, and extensively uses HIT in his work. HIT privacy/security issues are amongst his central HIT interests.
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Steven W. Mosher
| President
Population Research Institute
Steven W. Mosher is the President of the Virginia-based Population Research Institute (1995 to present). He previously served as the Director of the Asian Studies Center at the Claremont Institute from 1986-95. In 1991 he was appointed to serve as Commissioner of the U.S. Commission on Broadcasting to the PRC (1991-2).
He was educated at the University of Washington and Stanford University and, following a period of naval service (1968-76), in 1979 became the first American social scientist permitted to do field research in China since the Communist revolution.
His research interests include demographics, human rights, and reproductive health. He is the author of a number of books, including Population Control: Real Costs and Illusory Benefits.
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Jon A. Neiditz, JD
| President
Nelson Mullins Riley & Scarborough; Atlanta, GA
Jon Neiditz is a partner in Nelson Mullins Riley & Scarborough's Atlanta office and founder and co-leader of the Firm's rapidly growing Information Management Practice. Mr. Neiditz is known nationally for developing and implementing cost-effective information governance and management programs that effectively address the risks, costs and opportunities associated with electronic information -- including in communications, collaboration and networking technologies; cloud computing and e-records management -- and as a trusted advisor on data management issues. He has particular depth in the areas of health (as one of the most experienced HIPAA/HITECH attorneys and consultants), financial, educational and other types of personal information, and is best known as a zealous manager of data breaches and related risks. He also helps organizations manage their digital assets, opportunities and issues more generally, as they find their place in the read/write, big data world.
Mr. Neiditz serves as Chair of the Board of the Georgia Charitable Care Network. He holds a BA, magna cum laude, from Dartmouth College, and a JD from Yale Law School.
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Frank Pasquale, JD
| Schering-Plough Professor in Health Care Regulation and Enforcement
Seton Hall Law School
Affiliate Fellow
Yale Law School's Information Society Project
Frank Pasquale is the Schering-Plough Professor in Health Care Regulation and Enforcement, Seton Hall Law School, and is an Affiliate Fellow at Yale Law School's Information Society Project. He was the Chair of the American Association of Law Schools' Section on Privacy and Defamation in 2011. He has been a visiting professor at Yale and Cardozo Law Schools, and a visiting fellow at Princeton's Center for Information Technology Policy.
Pasquale has testified before Congress (appearing with the General Counsels of Google and Microsoft), and has twice presented to committees at the National Academy of Sciences on surveillance technologies. He received a J.D. from Yale Law School, an M.Phil from Oxford University, and a B.A. summa cum laude from Harvard University. Pasquale's scholarship focuses on the power wielded by large intermediaries, including insurers, internet service providers, financial institutions, and search engines. He is writing a book on the topic titled “The Black Box Society: Reputation, Search, Finance” (under contract to Harvard University Press).
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Deborah C. Peel, MD
| Founder & Chair
Patient Privacy Rights
Dr. Peel has been a practicing as a physician and psychoanalyst for over thirty years. She is the leading national and international advocate for patients' rights to control access to sensitive personal health information. She began working on health privacy rights during the Clinton Healthcare Initiative in 1993, which required every doctor-patient visit to be recorded in a national health data base, even if patients paid out-of-pocket for treatment .
In 2004, she formed Patient Privacy Rights (PPR), http://www.patientprivacyrights.org, which has become the nation’s and the world's leading consumer health privacy advocacy organization. PPR has over 12,000 members in all 50 states, and leads the bi-partisan Coalition for Patient Privacy, representing over 10.3 million Americans.
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Joy Pritts, JD
| Chief Privacy Officer
Office of the National Coordinator for Health IT
Department of Health and Human Services
Joy Pritts joined the Office of the National Coordinator for Health Information Technology (ONC) in February 2010 as Chief Privacy Officer. Ms. Pritts provides critical advice to the Secretary and the National Coordinator in developing and implementing ONC’s HITECH privacy and security programs.
Prior to joining ONC, Ms. Pritts was on the faculty at Georgetown University where she held a joint appointment as a Senior Scholar with the O’Neill Institute for National and Global Health Law and as a Research Associate Professor with the Health Policy Institute. Her work has focused on the critical issues surrounding the privacy of health information and patient access to medical records at both the federal and state levels. She has written extensively on such topics as the HIPAA Privacy Rule, federal alcohol and substance abuse confidentiality laws, and the confidentiality of health information in research. She has worked closely with national consumer organizations and federal policymakers on ensuring the protection of health information. Ms. Pritts has most recently participated in a number of federal HIT initiatives including serving on the Technical Advisory Panel for the multi-state Health Information Security and Privacy Collaborative (HISPC) and as a board member of the National Governors Association’s State Alliance for e-Health.
Ms. Pritts holds a law degree from Case Western Reserve University School of Law, and a Bachelor of Arts degree from Oberlin College.
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James C. Pyles, JD
| Co-Founder & Principal
Powers, Pyles, Sutter, & Verville
Jim Pyles, a co-founder of the firm and has more than thirty-five years of experience in litigation, counseling, and lobbying in the field of health law. Upon graduating from law school, Mr. Pyles served for six years in the Office of the General Counsel for the US Department of Health, Education, and Welfare, where he received the department's Distinguished Service Award for successfully handling complex Medicare litigation.
Mr. Pyles has experience in nearly all areas of the firm's practice, but he is nationally known for his expertise with respect to the legal issues related to health information technology and health information privacy, chronic care coordination, home health, hospice, and ambulatory care services. He is also a registered lobbyist for several health care associations and participates intensively in health reform at the federal and state levels. He has crafted major pieces of health care legislation in many areas covered by the Medicare Act.
Mr. Pyles' expertise encompasses the legislative and regulatory aspects of government and private health insurance coverage and reimbursement; the legal aspects of acquisitions, mergers, joint ventures, and networks; and the law pertaining to fraud and abuse. He writes and lectures frequently on health reform issues and appears periodically on national television as a health care commentator.
Mr. Pyles serves as counsel to several national mental health and state home care associations and is a member of the Board of Directors of a national physician house call association.
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Laura Lyman Rodriguez, PhD
| Director of the Office of Policy, Communications, and Education
National Human Genome Research Institute, National Institutes of Health (NIH)
Laura Lyman Rodriguez, Ph.D., is the Director of the Office of Policy, Communications, and Education at the National Human Genome Research Institute (NHGRI), National Institutes of Health (NIH). Dr. Rodriguez works to develop and implement policy for research initiatives at the NHGRI, as well as trans-NIH programs. She is particularly interested in the policy and ethics questions related to the inclusion of human research participants in genomics and genetics research. Dr. Rodriguez also is interested in the policy and organizational issues associated with the development and establishment of strategic partnerships. Among other activities, Dr. Rodriguez has provided leadership for many of the policy development activities pertaining to genomic data sharing and the creation of the database for Genotypes and Phenotypes (dbGaP) at the NIH.
Dr. Rodriguez has been with NHGRI since 2002 and served in multiple capacities during her tenure with the Institute. Prior to coming to NIH, she was a Senior Program Officer at the National Academies Institute of Medicine where she was the Study Director for a project examining the federal system for protecting human research participants. She spent time in the legislative arena as an American Association for the Advancement of Science (AAAS) Congressional Science Fellow working on national science policy issues and K-12 math and science education, and with the Office of Public Affairs at the Federation of American Societies for Experimental Biology covering federal funding issues and various topics in bioethics.
Dr. Rodriguez received her bachelor of science with honors in biology from Washington and Lee University in Virginia and earned a doctorate in cell biology from Baylor College of Medicine in Texas.
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Marc Rotenberg, JD
| Executive Director
Electronic Privacy Information Center (EPIC)
Marc Rotenberg is Executive Director of the Electronic Privacy Information Center (EPIC) in Washington, DC. He teaches information privacy law at Georgetown University Law Center and has testified before Congress on many issues, including access to information, encryption policy, consumer protection, computer security, and communications privacy. He testified before the 9-11 Commission on "Security and Liberty: Protecting Privacy, Preventing Terrorism." He has served on several national and international advisory panels, including the expert panels on Cryptography Policy and Computer Security for the OECD, the Legal Experts on Cyberspace Law for UNESCO, and the Countering Spam program of the ITU. He currently chairs the ABA Committee on Privacy and Information Protection. He is the former Chair of the Public Interest Registry, which manages the .ORG domain. He is editor of Privacy and Human Rights and The Privacy Law Sourcebook, and co-editor (with Daniel J. Solove and Paul Schwartz) of Information Privacy Law (Aspen Publishing 2007). He is a graduate of Harvard College and Stanford Law School. He served as Counsel to Senator Patrick J. Leahy on the Senate Judiciary Committee after graduation from law school. He is a Fellow of the American Bar Foundation and the recipient of several awards including the World Technology Award in Law. A tournament chess player, Marc won the 2007 Washington, DC Chess Championship.
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Mark Rothstein, JD
| Herbert F. Boehl Chair of Law & Medicine, Founding Director
Institute for Bioethics, Health Policy and Law
University of Louisville School of Medicine
Mark A. Rothstein holds the Herbert F. Boehl Chair of Law and Medicine and is the Founding Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine. He received his B.A. from the University of Pittsburgh and his J.D. from Georgetown University. Professor Rothstein has concentrated his research on bioethics, genetics, health privacy, public health law, and employment law. From 1999-2008, he served as Chair of the Subcommittee on Privacy and Confidentiality of the National Committee on Vital and Health Statistics, the statutory advisory committee to the Secretary of Health and Human Services on health information policy. He is past president of the American Society of Law, Medicine and Ethics.
He is the author or editor of 19 books and nearly 200 book chapters and articles in leading journals of bioethics, law, medicine, and public health. His latest book is Employment Law (with Craver, Schroeder, & Shoben)(Thomson/West, 4th ed., 2009).
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John Sabo, CISSP
| Director - Global Government Relations
CA Technologies
John Sabo is Director, Global Government Relations, CA Technologies, where he focuses on trusted infrastructure technologies, policies, and practices. He provides leadership in industry and government-led data security, privacy, and critical infrastructure protection initiatives and is active in standards development.
John co-chairs the OASIS Privacy Management Reference Model Technical Committee and serves as chair of the IDtrust Member Section Steering Committee. He is an OASIS representative to the Internet Technical Advisory Committee, providing advice on communications policy issues to the Organization for Economic Co-operation and Development (OECD). In June 2011, John spoke on the role of standards organizations in fostering data privacy at the OECD High Level Meeting on the Internet Economy. He has also represented OASIS in ISO/IEC and ITU-T technical meetings. In July 2011 John was named an OASIS Distinguished Contributor.
John was President of the non-profit International Security Trust and Privacy Alliance (ISTPA), and co-authored the “ISTPA Privacy Management Reference Model v2.0” and edited the ISTPA “Analysis of Privacy Principles: Making Privacy Operational.” John served as an original member of the Department of Homeland Security Data Privacy and Integrity Advisory Committee and was a member of the NIST Information Security and Privacy Advisory Board.
Contributing to formal consultations and expert panels, John is an invited speaker at international security and privacy conferences, has authored published journal articles, and contributes to technical studies on security, privacy and trust issues.
Before working in the private sector, John was Director of the U.S. Social Security Administration’s Electronic Services Staff and recognized as a leader in the development of e-government services and privacy-compliant identity systems. He holds degrees from King’s College (Pennsylvania) and the University of Notre Dame, and is a Certified Information Systems Security Professional (CISSP).
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William M. Sage, MD, JD
| Vice Provost for Health Affairs
James R. Dougherty Chair for Faculty Excellence
University of Texas at Austin, School of Law
A.B., Harvard, 1982; M.D., J.D., Stanford, 1988. Docteur h.c., Universite Paris Descartes, 2011. Note editor, Stanford Law Review. Areas of teaching are health law, regulatory theory, antitrust, and professional responsibility. Taught at Columbia Law School 1995-2006. Associate, O'Melveny & Myers, Los Angeles, 1990-95. President's Task Force on Health Care Reform, 1993. Resident in anesthesiology and critical care medicine, The Johns Hopkins Hospital, 1989-90. Intern, Mercy Hospital and Medical Center, San Diego, 1988-89.
Member, Institute of Medicine; Member, The Academy of Medicine, Engineering, and Science of Texas; Fellow, Hastings Center on bioethics. Board member, Public Health Law & Policy. Vice chair, Children's Optimal Health. Serves on the editorial board of Health Affairs. Serves on the Code Red Task Force on the uninsured in Texas. Principal investigator, The Pew Charitable Trusts Project on Medical Liability in Pennsylvania (2002-05). Served on the Institute of Medicine's Committee on Rapid Advances in Health Care (2002). Received Robert Wood Johnson Foundation Investigator Award in Health Policy Research (1998).
Co-editor, Medical Malpractice and the U.S. Health Care System (Cambridge University Press, 2006), Uncertain Times: Kenneth Arrow and the Changing Economics of Health Care (Duke University Press, 2003). Articles include: "Regulating through Information: Disclosure Laws and American Health Care," Columbia Law Review (1999); "Antitrust, Health Care Quality, and the Courts," Columbia Law Review (with Hammer, 2002); "Medical Liability and Patient Safety," Health Affairs (2003); "The Impact of Malpractice Reforms on the Supply of Physician Services," JAMA (with Kessler and Becker, 2005); "Some Principles Require Principals: Why Banning 'Conflicts of Interest' Won’t Solve Incentive Problems in Biomedical Research," Texas Law Review (2007); "Legislating Delivery System Reform: A 30,000 ft. view of the 800 lb. gorilla," Health Affairs (2007); "Relational Duties, Regulatory Duties, and the Widening Gap Between Individual Health Law and Collective Health Policy," Georgetown Law Journal (2008); and "Combating Antimicrobial Resistance: Regulatory Strategies and Institutional Capacity," Tulane Law Review (with Hyman, 2010).
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COL John S. Scott, MD
| Program Director, Clinical Informatics and Accession Medical Policy
Office of the Assistant Secretary of Defense for Health Affairs
COL Scott is a pediatric cardiologist with 22 years of experience in Army medicine. He obtained a BA in Biology from Princeton University in 1986, then earned his MD at the Uniformed Services University of the Health Sciences. Recognized in his residency as an "early adopter" of health information technology systems, he helped lead user groups to implement new components of the military’s electronic medical record systems in various clinical assignments, including two tours to Iraq (2003 and 2009-10). After a clinical research fellowship at the Walter Reed Army Institute of Research, he was assigned to Walter Reed Army Medical Center in 2006 as the Chief of the newly formed Quality Management Division. In that assignment he learned to leverage electronic record systems to help improve and measure clinical quality. COL Scott was named the Chief of the Clinical Informatics Department at Walter Reed in August 2008, and in 2010 was designated the Chief Medical Information Officer of Walter Reed and the Joint Task Force, Capital Medicine. In that role he led informatics efforts to support Walter Reed’s merger with the National Naval Medical Center to form the Walter Reed National Military Medical Center in 2011. COL Scott was assigned to the Office of the Deputy Assistant Secretary of Defense for Clinical and Program Policy, Health Affairs, in January 2012. He currently serves as the Program Director for Clinical Informatics and Accession Medical Policy, and is part of the team defining the clinical requirements for the Interagency Electronic Health Record, being jointly created by the Department of Defense and the Department of Veterans Affairs.
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Kathryn Serkes
| Chair & Co-Founder
Doctor Patient Medical Association
Kathryn Serkes is Chair and Co-Founder of the Doctor Patient Medical Association (DPMA) and the Patient Power Alliance, the first national group of patients AND doctors working for freedom in medicine, which was prompted by grassroots activism during the debate on healthcare reform in 2009-2010. She was one of the chief strategists organizing the efforts against socialized medicine legislation, speaking at more than 35 rallies and town halls, and appearing on numerous radio and television shows.
For more than 16 years, she served as public affairs and policy consultant for the Association of American Physicians and Surgeons, representing that group during it’s litigation against the Hillary Clinton and the White House Health Care Task Force, and helping to spur the national coalition that lead to the defeat of the Clinton health plan.
Appointed by four Administrations to serve at the Federal Emergency Management Agency, she received that agency’s highest recognition, the “Director’s Award for Meritorious Service.” An Emmy-award winning producer and reporter before founding Square One, her academic credentials include the faculty of Bellevue Community College and Guest Lecturer at George Washington University Graduate School of Political Management.
Her writing has appeared in publications such as the Wall Street Journal, USA Today, The Hill and The Journal of American Physicians and Surgeons, and she’s been a guest on shows such as “Larry King Live,” “The Today Show” and “The O’Reilly Factor.” She is co-author of “Patient Power: The Patient’s Handbook.”
Ms. Serkes sits on the Health and Human Services Task Force of the American Legislative Exchange Council, the largest bi-partisan association of state legislators. She is founder and chair of the “Coalition Against Prosecutorial Abuse” to rein in government trial lawyers – the criminal companion to civil tort reform; “Hands Off Our Kids Coalition” to halt government-mandated vaccines, and sits on the Advisory Board of GOProud.
Kathryn is also president and founder of Square One Media Network, a strategic communications firm serving clients such as Boeing, Sheraton Hotels, Continental Airlines, Time- Warner Communications and numerous political campaigns since 1985. Offices are located in Seattle and Washington D.C.
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David Staggs, JD
| Chief Technology Officer
Jericho Systems Corporation
Chief Technology Officer (CTO) David Staggs is a computer engineer and patent attorney with 30 years of experience in engineering information systems, defining business requirements, leading teams, and developing security standards. Prior to joining Jericho, Staggs managed a team supporting the Nationwide Health Information Network (NwHIN) / Virtual Lifetime Electronic Record (VLER) project sponsored by the Veterans Health Administration (VHA) within the Department of Veterans Affairs (VA).
Staggs holds a J.D. from Thomas Jefferson School of Law, two B.A.s from University of California, Santa Cruz, and certification as an Information Systems Security Professional (CISSP). He has authored eight technical standards.
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Michael Stearns, MD
| President & CEO
e-MDs
Dr. Stearns is the President and CEO of e-MDs, Inc. a leading national vendor of electronic health records. He is a board certified neurologist who won several teaching awards during his 15 years in clinical and academic medicine. He has 14 years of experience in health information technology and has provided leadership to several high profile projects at the National Library of Medicine, the National Cancer Institute, and the College of American Pathologists. Dr. Stearns served as the international director of SNOMED, where he played a central role in the development of SNOMED CT, an evolving standard for the electronic transmission of clinical information being adopted worldwide. He has 9 years of direct experience with the design and implementation of electronic health records. He is also a Certified Professional Coder and Family Practice Coder and a member of the American Association of Professional Coders Family Practice Steering Committee.
Dr. Stearns is an accomplished lecturer and has been invited to speak on a wide array of topics at national and local venues including electronic health records, standards, health information exchanges, Meaningful Use, coding compliance, clinical terminology, patient safety, patient privacy, managing data integrity in information systems, SNOMED CT, the history of ICD-9-CM, quality of care improvements related to technology, clinical efficacy research, practice optimization, HIT workforce development, and genomic medicine (personalized healthcare). Dr. Stearns sit on several committees and boards, including serving as the board president of the Texas e-Health Alliance, a member of the American Society of Health Information Managers Physician Practice Council, a panel member and chief technology editor for the American Society of Health Information Managers, a member of the Texas HIT Workforce Development Executive Committee, and a member of the University of Texas Healthcare IT Task Force. Dr. Stearns played a central role in creating the University of Texas at Austin HIT certificate program, a nationally recognized model for HIT workforce development.
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Steve Steffensen, MD
| Chief Medical Information Officer
Telemedicine & Advanced Technology Research Center
Dr. Steffensen is a board certified Neurologist and former active duty Navy officer who is recognized as a national leader in healthcare informatics. Dr. Steffensen's responsibilities include management of the largest health IT research and development program within the Department of Defense focusing on electronic health record, mobile health, and medical device technologies. Prior to his military career, Dr. Steffensen was the cofounder and lead programmer for an online electronic medical record company supporting the needs of physicians in remote under-served communities. During his military career, Dr. Steffensen gained a reputation for disruptive innovation by creating the "PC-Generic" AIM form for data entry into the military electronic health record. He was also one of the early pioneers in voice recognition technologies contributing to the creation of the "MAPS" initiative in the Army. Dr. Steffensen played a major role in the Department of Defense efforts in support of the Nationwide Health Information Network (NwHIN) and served as the Military Health System Coordinator for the first phase of the Virtual Lifetime Electronic Record (VLER) initiative. It was during this time, while supporting the CONNECT initiative, that Dr. Steffensen emerged as a thought leader and advocate for open source software development within the federal government. He continues to make significant contributions to the open source health IT community in areas of clinical decision support, data visualization, medical device interoperability, and mobile health solutions. His background as a programmer, clinician, and former military officer has afforded Dr. Steffensen a unique perspective of the problems facing healthcare today.
Specialties: Open source electronic health record interoperability, mobile health technology, voice recognition and data visualization. Clinical Neurology, Clinical Sleep Medicine.
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Nicolas P. Terry, JD
| Hall Render Professor of Law and Co-Director of the Hall Center for Law and Health
Indiana University McKinney School of Law
Nicolas P. Terry is The Hall Render Professor of Law at the Indiana University Robert H. McKinney School of Law. He serves as Co-Director of the Hall Center for Law and Health. Professor Terry teaches Torts, Products Liability, Health Information Technology, Law & Science, and Health Care Quality. Educated at Kingston University and the University of Cambridge, Professor Terry began his academic career as a member of the law faculty of the University of Exeter in England before joining the faculty at Saint Louis University School of Law. From 1996-1997 he was Director of Legal Education at LEXIS-NEXIS. He has been a Senior Fellow at Melbourne Law School and held visiting faculty positions at the law schools of Santa Clara University, the University of Missouri-Columbia, Washington University, and the University of Iowa. From 2000 to 2008 Professor Terry served as Co-director of Saint Louis University’s Center for Health Law Studies and from 2008 to 2010 as the School of Law’s Senior Associate Dean. Professor Terry’s research interests lie primarily at the intersection of medicine, law, and information technology. He is one of the permanent bloggers at the HealthLawProf blog.
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Richard Thoreson, PhD
| Public Health Advisor
Center for Substance Abuse Treatment, SAMHSA
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Lee Tien, JD
| Senior Staff Attorney
Electronic Frontier Foundation
Lee Tien is a Senior Staff Attorney with the Electronic Frontier Foundation (EFF), specializing in free speech law and privacy law, including computer security issues. As part of his policy work in electronic health records, he advises the California Health and Human Services Agency and its Office of Health Information Integrity as a member of the California Privacy and Security Advisory Board Privacy Steering Team. He is also a member of the Policy Advisory Committee for Cal eConnect. He has published articles on children's sexuality and information technology, anonymity, surveillance, the First Amendment status of publishing computer software, and the state secrets privilege. He received his undergraduate degree in psychology from Stanford University and his law degree from the University of California-Berkeley School of Law, where he also did graduate work in the Program in Jurisprudence and Social Policy.
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Dave Wanser, PhD
| Senior Clinical Consultant
Intellica
Dave Wanser, Ph.D. is a Senior Clinical Consultant for Intellica, a health information technology company with a public sector focus and a consultant with a private practice focusing on behavioral health and healthcare technology. He was previously a Visiting Fellow at the Lyndon B. Johnson School of Public Affairs at the University of Texas at Austin from 2007-2011, and a lecturer in the Health Information Technology Program within the College of Natural Sciences. He served as Executive Director of the National Data Infrastructure Improvement Consortium (NDIIC) from founding until October 2010. Until March 2007 he served as the Deputy Commissioner for Behavioral and Community Health at the Texas Department of State Health Services, the consolidated department for mental health, substance abuse and public health, during the first three years after its creation in 2004.
Dr. Wanser was appointed as Executive Director of the Texas Commission on Alcohol and Drug Abuse in 2001 and served in that role for three years. Preceding this and during his fifteen year tenure at the Texas Department of Mental Health and Mental Retardation, Dr. Wanser served as the Director of Behavioral Health Services and Director of the NorthSTAR Managed Behavioral Health Program and in other management positions.
He is past president of the Board of Directors of the National Association of State Substance Abuse Directors and past president of the Board of Directors of NDIIC. He also served as the chairperson of the Adult Services Division of the National Association of State Mental Health Program Directors. He has served on advisory boards for the Department of HHS Health Information Technology Policy Committee Privacy Workgroup and the Certification Commission for Health Information Technology Behavioral Health Workgroup. He has also served on advisory boards for several other national organizations and numerous federally sponsored advisory groups. Dr. Wanser has done extensive consulting in health, health information technology, mental health and substance use service systems. He has a Ph.D. in psychology from the University of Oklahoma, where he was recognized as a distinguished alumnus in 2005.
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CAPT Michael Weiner, MD
| Chief Medical Officer
Defense Systems
CAPT Michael Weiner is the Acting Deputy Program Manager and Chief Medical officer for the Defense Health Information Management System (DHIMS). He is responsible for overseeing the development and deployment of the Department of Defense (DoD) electronic health record (EHR) systems operating in Military Treatment Facilities worldwide. As an advocate for the military’s medical community, CAPT Weiner advises DHIMS senior leadership and drives delivery of usable solutions to equip health care providers with technology that supports the usability and quality of software applications built to meet the military’s clinical needs.
Prior to joining DHIMS, CAPT Weiner served as the Director of Information Technology (IT) Plans and Policy and Governance and Enterprise Architecture for the Chief Information Officer of Navy Medicine at the Bureau of Medicine and Surgery (BUMED). Previously, CAPT Weiner served in Little Creek, Va., as the plank owner of the Navy Expeditionary Combat Command (NECC). He was the Senior Medical Officer to more than 200 medical departments supporting 40,000 sailors worldwide. He leveraged IT capabilities within the healthcare arena to include voice recognition with the Navy Theater Electronic Medical Record and digitalized healthcare records for contingency operations worldwide. His team also created and globally deployed “blow out injury” kits that provide Service members immediate care during deployment at the point of injury. His team’s medical work was praised by the House Appropriations Committee and has become the standard for many international forces. Before working with the NECC, CAPT Weiner attended the Navy’s dive school in Panama City, Fla., earning his certification as a Navy Diving Medical Officer. Subsequently, he served as Director of Ambulatory Care in Yokosuka Naval Hospital in Yokosuka, Japan. As the head of outpatient medicine there, he revitalized the directorate and created unprecedented patient satisfaction. His past assignments also include two tours as a flight surgeon in Cherry Point, N.C., with VMAT-203, the Marine Corps Harrier training squadron, and VQ2 Navy in Rota, Spain.
CAPT Weiner graduated from the U.S. Naval Academy and attended medical school at the Philadelphia College of Osteopathic Medicine. He completed his internship in family medicine at the Jacksonville Naval Hospital and proceeded to Flight Surgery School in Pensacola, Fla. CAPT Weiner completed his residency in internal medicine at Balboa Naval Hospital in San Diego earning his board certified in internal medicine. He also served as a staff internist at Bethesda Naval Hospital in Maryland.
CAPT Weiner also holds advanced degrees in management and a Master’s Degree in Information Systems Technology from George Washington University in Washington, D.C. He has received numerous awards from the Navy, including two Meritorious Service Medals, an Air Medal, an Air Medal Single Strike Award, Navy Commendation Medals and a Navy Achievement Medal.
CAPT Weiner is an active member of the American College of Physicians, the American Osteopathic Association and the American Telemedicine Association. He is the military representative to the Philadelphia College of Osteopathic Medicine Alumni Board. He is also a Certified Professional in Healthcare Information and Management Systems(CPHIMS) and certified by the National Defense University as a Chief Information Officer (CIO).
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Alan Westin, JD, PhD
| Emeritus Professor of Public Law and Government
Columbia University, Department of Political Science
Advisor
Arnall Golden Gregory, Atlanta & Washington, DC
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Marcy Wilder
| Co-Chair, Global Privacy & Information Management Group
Hogan Lovells US LLP
Marcy Wilder is co-chair of the global Hogan Lovells Privacy and Information Management Group and her practice focuses on health information law. Ms. Wilder assists clients in managing risks associated with privacy and information practices including compliance with HITECH, HIPAA and federal and state privacy laws. She also has extensive experience helping clients manage health data breaches. She is recognized as a leading privacy lawyer in both Chambers USA and the Legal 500 and prior to joining Hogan Lovells, she served as Deputy General Counsel of the U.S. Department of Health and Human Services, where she was the lead attorney in the development of HIPAA privacy regulations. |
