Introduction 8:30 - 8:40 | WelcomeView the video |
Session 1 8:45 - 9:10 | How the American Public Views Patient Privacy and Health Technology Systems: What Ten Years of Surveys Tell Us- Alan Westin, Arnall Golden Gregory, Atlanta and Washington DC.
View the video View the Presentation Slides |
Session 2 9:15 - 10:10 | Contrasting Beliefs about Privacy Protection in the Digital Era- Moderator: Anita Allen, University of Pennsylvania Law School
- Panel: Ross Anderson, University of Cambridge; Nancy Barto, Arizona State Senate; Corinne Carey, NYCLU; Lisa Gallagher, HIMSS; Helen Nissenbaum, New York University; Jim Pyles, Powers, Pyles, Sutter & Verville; Jessica Rich, FTC Bureau of Consumer Protection
- Rapporteur: Andy Oram, O'Reilly Media
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| 20 minute coffee break 10:15 - 10:35 |
Session 3 10:40 - 12:50 | Case Studies: Finding Solutions for three urgent privacy issues1. Consent and segmentation of data -- 2010 PCAST report View the video 2. Control of patient data -- Health Information ExchangesView the video 3. Secondary uses of personal health information in health databases -- implications of Sorrell vs. IMS Health- Moderator: William M. Sage, The University of Texas at Austin School of Law
- Panel: Bridget Asay, Attorney General's Office, Vermont; Kimberly Gray, IMS Health; Stephania H. Griffin, Veterans Health Administration; Christian Hamann, Gleiss Lutz, Germany; Latanya Sweeney, Carnegie Mellon University; John Verdi, Electronic Privacy Information Center
- Rapporteur: Benedicte Callan, LBJ School of Public Affairs, University of Texas at Austin
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Lunch Keynote 12:50 - 2:20 | "What do research and history tell us about privacy today?: A conversation with Alan Westin"- Keynote Discussion: Jeffrey Rosen, George Washington University; Alan Westin, Arnall Golden Gregory, Atlanta and Washington DC.
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Putting the “I” in Health IT Privacy and Security: How Consumers can be part of the policy-making processView the video |
Session 4 2:25 - 3:20 | Concurrent sessions to develop problem statements, to identify research needs, to articulate actionable technical, educational and/or policy recommendations. - What principles and regulations should apply to the collection and use of health data? And how should they be enforced?
Moderated by: Barry Steinhardt, Privacy International - Business Analytics, Data Exchange, and the Public Good
Moderated by: Barry Chaiken, former chairman HIMSS, Imprivata - Developing a collaborative approach - realizing benefits of health data whilst enabling patient control
Moderated by: Joe McCarron, Reos Partners & Brian Mulconrey, Tomorrow's Enterprises Corporation - Educating the States and the Public about Health Privacy
Moderated by: H. Westley Clark, SAMHSA - Meeting the technical challenges of distributed consent and authorization
Moderated by: Steve Steffensen, TATRC, US Army Special Guest: Guido van 't Noordende
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| 20 minute break 3:25 - 3:45 |
Session 5 3:55 - 4:50 | Looking Ahead: The 2012 Health Privacy AgendaPanel discussion with representatives from workgroups - Moderator: David W. Hilgers, Brown McCarroll, L.L.P. & ABA Health Privacy
- Panel: Session 4 Workgroup Moderators; David Warner, LBJ School of Public Affairs, The University of Texas at Austin; Deborah C. Peel, Patient Privacy Rights
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Reception 5:00 - 6:30 | Reception for All Summit Attendees |