M. Peter Adler
VP, Health and Cybersecurity Counsel
CPO, Government Affairs
SRA International, Inc.
M. Peter Adler is a Vice President at SRA International, Inc., where he serves as the company’s Chief Privacy Officer and Senior Counsel, Cybersecurity and Health and leads the Government Affairs Office In these capacities, he advises the company on compliance with legal and contractual requirements under privacy and cybersecurity laws, regulations and standards. Peter has responsibility for policies and procedures for data privacy and cybersecurity. He is also the lead attorney for the SRA’s Health Group, and guides the company concerning legislative and regulatory trends and developments.
Peter previously served as a partner in various law firms located in Washington DC, where he advised clients on U.S. and international cybersecurity and privacy law and regulations. Immediately prior to joining SRA, Peter was the Chief Privacy Officer of UnitedHealth Group.
Mr. Adler received a Bachelor of Science (B.S.) from Ohio University, a Juris Doctor (J.D.) from William Mitchell College of Law and Master of Laws (LL.M.), International from the Georgetown University Law Center. In addition, Peter holds a Certified Information Systems Security Professional (CISSP) certification from (ISC)2 and was in the inaugural group to receive the Certified Information Privacy Professional (CIPP) certification from the International Association of Privacy Professionals.
Matthew Arnheiter, JD
VP of Innovations
Demelza Baer, JD
American Civil Liberties Union
Demelza Baer is a Policy Counsel in the American Civil Liberties Union’s Washington Legislative Office, focusing on disability rights, racial justice issues, human rights, and housing policy. Ms. Baer previously served as counsel to the U.S. House Judiciary Committee for Representative John Conyers, Jr., who is the Ranking Member and previous Chairman of the Judiciary Committee. Prior to law school, Ms. Baer worked on justice policy research for the Urban Institute. In her spare time, Ms. Baer volunteers with the D.C. Volunteer Lawyers Project, which provides free legal services to low-income District of Columbia residents in family law cases; she is listed on the 2012 Capital Pro Bono Honor Roll for her volunteer work. Ms. Baer has a J.D. magna cum laude from Tulane University Law School, where she received a Dean’s Scholarship, and served as the Chief Justice of the Tulane Law School Moot Court Board and as a member of the Tulane Journal of Technology & Intellectual Property. She received her B.A. with Honors from Northwestern University, with a double major in political science and sociology.
Cliff Baker is an industry leader in healthcare information technology risk management, privacy, and security and has over eighteen years of experience in the industry. He has worked with the nation’s leading healthcare organizations across all sectors of the industry including developing strategic plans for a number of global and national organizations, working on multi-year complex system implementations, and assisting organizations with board level risk management decisions. Mr. Baker has served as an executive advisor for key industry affiliations and companies to define reasonable practices that are adopted broadly across the industry. He is a sought after contributor to various health IT and information risk management forums, the lead author of the HITRUST Common Security Framework, and author of various IT Risk Management standards and publications. Prior to leading Meditology, Mr. Baker was the Chief Strategy Officer for HITRUST and also led PricewaterhouseCoopers’ healthcare security practice.
Lara Ballard, JD
Special Advisor for Privacy & Technology
U.S. Department of State
Lara Ballard is currently serving as the Special Advisor for Privacy and Technology in the Office of Communications and Information Policy at the U.S. Department of State. She is the head of the U.S. Delegation to the Working Party on Information Security and Privacy (WPISP) at the Organization for Economic Cooperation and Development (OECD) in Paris and has been an active participant in the OECD’s ongoing review of its 1980 Guidelines Governing the Protection of Privacy and Transborder Flows of Data. She served as an Attorney-Adviser at the State Department from 1999 to 2012. She is a Certified Information Privacy Professional (CIPP), a certification issued by the International Association of Privacy Professionals (IAPP). She has served as the State Department lead attorney on privacy and technology law, including but not limited to the Privacy Act of 1974, the Federal Information Security Management Act of 2002 (FISMA), and the Health Information Portability and Accountability Act of 1996 (HIPAA). Lara has also defended the State Department in litigation, both domestically and in the Iran-U.S. Claims Tribunal, and has advised on various aspects of international criminal law and arms export control. She clerked for the Hon. Fred I. Parker, U.S. Court of Appeals for the Second Circuit. She is a graduate of Columbia University Law School and Georgetown University’s School of Foreign Service and was an Air Defense Artillery officer in the U.S. Army from 1991 to 1995, serving in Kaiserslautern, Germany and Kuwait City, Kuwait.
U.K. Privacy Advocate
Phil Booth is a campaigner and privacy advocate from the UK. Phil led the non-partisan NO2ID campaign from 2004-2011, campaigning successfully to defeat the introduction of ID cards and other 'database state' initiatives. His work has been recognized by awards from Privacy International (2008) and Liberty (2010), and by ministers in Parliament, one of whom described NO2ID as “one of the most successful pressure groups in history”.
Phil now coordinates medConfidential, a campaign with partners across the UK and Europe and around the world fighting for patient privacy, consent and confidentiality in health and social care. In his other work as a technologist and social entrepreneur, Phil advises a number of organizations and initiatives that seek to provide individuals with greater control over their own personal data.
Counselor for Health, Welfare, & Sports
Royal Netherlands Embassy
Peter A. Bootsma, M.D. is presently the Counselor for Health, Welfare and Sports at the Royal Netherlands Embassy in Washington D.C. representing Dutch health and welfare interests in the United States and Canada. Before that Mr. Bootsma was Regional Director at the Netherlands Health Care Inspectorate as from 2006. Between 2003-2006, he was (Acting) Director for Innovation, Professions and Ethics at the Netherlands Ministry of Health. Mr. Bootsma was Counselor for Health at the Netherlands Embassy earlier from 1999-2003. Prior to this Washington D.C. assignment, he was Deputy Head of the Bureau for International Corporation at the Netherlands’ National Institute of Public Health. In that position, he was responsible for technical assistance projects and health development projects in West and East-European countries and countries of the former Soviet Union. From 1985-1991, he was responsible for health care and technical assistance projects in a variety of developing countries in the Middle East, Asia and Africa. Mr. Bootsma started his career as a General Practitioner in an international setting for a period of five years.
Kelly Caine is Assistant Professor in the Human-Centered Computing Division of the School of Computing at Clemson University. Additionally, she serves as Senior Research Associate for the Institute for Information Infrastructure Protection and the ACM Special Interest Group on Computer-Human Interaction Health Community co-chair. Dr. Caine’s research sits at the intersection of human factors, privacy and health informatics. Her recent work has focused on designing, building and studying ways to make privacy-enhanced health technologies useful and easy for people to use.
She has been awarded grants from the National Science Foundation, among others, to conduct research on privacy-enhanced health technologies, and has written extensively on human factors issues related to designing privacy-enhanced systems. She has received numerous awards for her this work including, most recently, best security and privacy paper at the ACM Health Informatics conference and 1st prize at the American Public Health Association conference. Dr. Caine speaks and writes on human factors, privacy, health informatics, human computer interaction, and designing for special populations. She has a B.A. from the University of South Carolina and a M.S. and Ph.D. from the Georgia Institute of Technology.
Barry Chaiken, MD
Chief Medical Information Officer
Institute for Health Technology Transformation
Barry P. Chaiken, MD, MPH, FHIMSS has over 20 years experience in healthcare information technology, patient safety, clinical transformation, and public health. During his career, he worked with the National Institutes of Health, U.K’s. National Health Service, McKesson, and BearingPoint.
Over the past 20 years Chaiken provided expertise in quality and patient safety to provider and payor organizations helping them utilize information technology to improve clinical and administrative activities. He has served as guest lecturer and consultant on topics including patient safety, clinician adoption of information technology, quality improvement and the patient centered medical home.
Chaiken is currently Chief Medical Information Officer at Infor where he offers his expertise in strategy development, clinical transformation, and quality improvement. He is board certified in General Preventive Medicine and Public Health as well as Health Care Quality Management.
He is currently on the editorial board of the Journal of Patient Safety and the journal of Patient Safety and Quality Healthcare. Chaiken writes a column on technology and quality for the journal Patient Safety and Quality Health Care. He also serves as Conference Chair of the annual Digital Healthcare Conference and is a frequent contributor to WTN Media’s online publications.
Chaiken received his medical degree from SUNY Downstate Medical Center, NYC, his masters in public health degree in health services administration from the Harvard School of Public Health and his bachelors of arts degree in psychology from the University at Albany. He acquired his specialty training from the Centers for Disease Control as an Epidemic Intelligence Service Officer and from the New Jersey State Department of Health as a preventive medicine resident. He served as a Board member (2006-2010), Board Liaison to HIMSS Europe (2006-2009), and Board Chair (2009-2010), and continues his involvement as a Fellow of the Health Information Management and Systems Society (HIMSS).
David Chao, PhD
Chief Technology Officer
The Advisory Board
As the Chief Technology Officer of Crimson, David leads product development across the entire Crimson portfolio of products. He brings his experience in enterprise and highly complex scientific software development to lead the continuous injection of innovation into the Crimson product portfolio.
David has authored 19 publications in refereed journals, including two in Physical Review Letters, and several conference proceedings. He has also researched the models of fundamental forces of nature, as well as applications of computational techniques, from neural networks to theoretical and experimental physics.
David holds a bachelor’s degree and a PhD in physics from the University of Texas at Austin, with research in the field of theoretical particle physics. Prior to Crimson, he was the cofounder of SC Global Strategies, a consulting firm focused on successful integration of diverse product development and quality assurance teams within enterprise software companies. Prior to SC Global strategies, David built and led enterprise software product teams at Softbrands Hospitality and Trilogy.
H. Westley Clark, MD
Center for Substance Abuse Treatment (CSAT)
Substance Abuse & Mental Health Services Administration (SAMHSA)
As director of the Center for Substance Abuse Treatment under the Substance Abuse and Mental Health Services Administration, U.S. Department of Health and Human Services, Dr. H. Westley Clark leads the agency's efforts to provide effective and accessible treatment to all Americans with addictive disorders. Dr. Clark's areas of expertise include substance abuse treatment, methadone maintenance, pain management, dual diagnosis, psychopharmacology, anger management, and medical and legal issues. He is also a noted author, clinician, teacher and spokesperson in the field of addiction and forensic psychiatry.
Dr. Clark has received numerous awards for his contribution to the field of substance abuse treatment, including the 2008 President of the United States of America, Rank of Distinguished Executive in the Senior Executive Service Award in recognition of his personal commitment to excellence in government and public service. In 2003, he was honored with Presidential Rank of Meritorious Executive Award for his sustained superior accomplishments in management of programs of the United States Government and for noteworthy achievement of quality and efficiency in the public service. Dr. Clark was also awarded the 2008 John P. McGovern Award from the American Society of Addiction Medicine for his contributions toward increased understanding of the relationship between addiction and society.
Dr. Clark received his medical degree from the University of Michigan and his law degree from Harvard University Law School. Dr. Clark received his board certification from the American Board of Psychiatry and Neurology in psychiatry and sub-specialty certifications in addiction psychiatry. Dr. Clark is licensed to practice medicine in California, Maryland, Massachusetts and Michigan. He is also a member of the Washington, D.C., Bar Association.
Joseph Conn is a member of Modern Healthcare's team of reporters. He joined Modern Healthcare in 2001 and reports on information technology, quality/patient safety and the Joint Commission on Accreditation of Healthcare Organizations. Mr. Conn covers healthcare business news in Idaho, Nevada, Utah and Wyoming. His background includes 24 years of reporting and editing with various news publications, teaching journalism at Valparaiso (Ind.) University and working as a Peace Corps volunteer in Sierra Leone. Mr. Conn holds a BA in English from Valparaiso University.
Counselor, Digital Economy & ICT
Delegation of the European Union
Beatrice Covassi works as Couselor for the Digital Agenda and ICT matters at the EU Delegation to the US in Washington DC. Prior to joining the Delegation in October 2010, she was an EU official in the DG Information Society and Media of the European Commission. At DG INFSO she held the positions of deputy head of the Unit responsible for the Lisbon strategy and i2010 (the Digital Agenda), head of the digital broadcasting sector and assistant to the Director for Electronic Communications Policy. Her areas of specialization include the digital single market and new media. In Fall 2008 Ms Covassi spent a term as visiting Professor at George Mason University (Arlington, US) where she taught a course on EU New Media Policy. Prior to joining the European Commission in 2000, Ms Covassi worked as policy analyst for a major US law firm, focussing on the telecom practice, and as researcher in European law for the University of Hull (UK). Ms Covassi graduated with a thesis in comparative administrative law from the University of Florence (Italy), and holds postgraduate degrees from the College of Europe in Bruges (Belgium) and the Academy of European Public Law (Greece). In addition to her native Italian, Ms. Covassi is fluent also in English, French and Portuguese.
Senior Software Engineer
Edmond Scientific Company
Duane DeCouteau currently leads development efforts in the Dept. of Veterans Affairs (VA), Veterans Health Administration’s (VHA) Emerging Health Technologies Advancement Center(EHTAC), which focuses on the security and privacy needs of our Veterans.
Most recently Mr. DeCouteau led the efforts on an advanced technology demonstration of the Office of the National Coordinator for Health Information Technology (ONC) Data Segmentation for Privacy Initiative (DS4P) pilot between VA and Substance Abuse and Mental Health Services Administration (SAMHSA). The pilot utilized a standards-based approach for privacy metadata to achieve interoperability and appropriate sharing of protected information, ensuring those who receive it handle it correctly. The VA/SAMHSA pilot was publicly demonstrated at HIMSS 2013, and later certified to conform to requirements of the ONC Data Segmentation Implementation Guide.
Mr. DeCouteau with VA has co-authored 3 fully ratified international Oasis standards addressing patient security and privacy concerns: the Cross-Enterprise Security and Authorization (XPSA) Profiles of Security Assertion Markup Language(SAML), eXtensible Access Control Markup Language(XACML), and WS-Trust for Healthcare.
Senior Associate, National Priorities
Michelle DeMooy, Senior Associate, National Priorities, joined Consumer Action in January 2008 after 10 years of working on behalf of social justice. She advocates for consumers on privacy concerns, both in the digital and health arenas, as well as on issues in pre-dispute mandatory arbitration.
Prior to Consumer Action, Michelle was a Senior Consultant for eCampaigns at M+R Strategic Services, where she managed media strategy for the Campaign for Tobacco-Free Kids, The Wilderness Society, and labor rights group American Rights at Work. Before relocating to DC in 2005, Michelle provided strategic marketing, communications and technology consulting for non-profits and universities in the Philadelphia area, including the Women’s Opportunities Resource Center, To Our Children’s Future With Health, the University of Pennsylvania and Villanova University. At the Women’s Law Project in Philadelphia, she aided in the agency’s efforts to pursue high-impact litigation and public policy for gender equality concerns, including reproductive rights, contraceptive equity and Title IX programs, and volunteered as a legal information counselor for domestic violence victims.
In Philadelphia, Michelle was a senior marketing manager for Investor Broadcast Network where she managed corporate communications, brand advertising and marketing for radionwallstreet.com, hedgecall.com, and investorbroadcast.com. She was also involved in the early days of the dotcom boom, developing software and website projects for startups in San Francisco, including Looksmart, Ltd.
Michelle graduated from Lehigh University in 1997 with a degree in Government.
Debra N. Diener, JD, CIPP/G
Privacy & Identity Management Consultant
Privacy Made Simple
Director of Technical Services
Leo Dittemore is the Director of Information Services Security for DaVita HealthCare Partners – a position he has held for seven years. He has extensive data protection, project management, and systems design and operations experience in all facets of electronic business. He has held technical and managerial positions at other consulting groups, a large computer manufacturer, and aerospace companies prior to joining HealthCare Partners. He has a Bachelor’s degree in Computer Science from West Coast University and done graduate work in information networks at Carnegie Mellon. He is a member of the California Office of Health Information Integrity Policy Steering Team.
World Privacy Forum
Pam Dixon founded the World Privacy Forum in November 2003. An author and a researcher, she has consistently broken critical new ground in her work. She has written highly respected and influential studies in the area of privacy; she researched and wrote the first report to exist on medical identity theft (May 2006), identifying and bringing that topic to the public for the first time. Medical identity theft is now a widely acknowledged issue. In 2008, a California law was passed based on Dixon's research. She has written other influential studies in the area of workplace and job search privacy as well as financial privacy and Internet privacy. Dixon is the co-chair of the California Privacy and Security Advisory Board, a board that reports to California's Secretary of Health. She is also a board member of HITSP, a national-level board for determining health information technology standards. In 2008, Dixon won the Consumer Excellence Award.
Dixon was formerly a research fellow with the Privacy Foundation at Denver University's Sturm School of Law. There, she researched and wrote about technology-related privacy issues. Dixon has written extensively about technology both as a book author and as a former columnist for the San Diego Union Tribune. Ms. Dixon has written eight books for major publishers, including two critically acclaimed books about technology and consumers. Her books include titles for Random House / Times Books, among other major publishers. Dixon's most recent book is Online Privacy, published in fall 2011 and co-authored with longtime writing collaborator Robert Gellman. Dixon's first book was a finalist for the Computer Press Awards. Her book on distance education is a classic and is used in college classrooms today. Dixon has testified before Congress and Federal agencies, and is frequently quoted in the media regarding privacy and security issues. A selection of her press clippings are located here.
Barbara Evans, JD
Professor of Law; Co-director, Health Law & Policy Institute; Director, Center on Biotechnology & Law
University of Houston Law Center
Barbara Evans is a Professor, Co-director of Health Law, and Director of the Center on Biotechnology & Law at the University of Houston Law Center and is a Greenwall Foundation Faculty Scholar in Bioethics for the period 2010-2013. Earlier in her career, she was a Moscow-based partner in the international regulatory practice of a large New York law firm and later advised clients on U.S. and European medical device regulatory matters, before serving as Director of the Program in Pharmacogenomics, Ethics, and Public Policy at the Indiana University School of Medicine. Her current research projects include studies of privacy and data access issues affecting large interoperable health data networks and constitutional issues with CLIA regulation of genetic tests. She holds an electrical engineering degree from the University of Texas at Austin; M.S. and Ph.D. degrees from Stanford University; a J.D. from Yale Law School; an LL.M. in Health Law from the University of Houston, and she completed a Post-doctoral Fellowship in Clinical Ethics at the M.D. Anderson Cancer Center.
Deloitte & Touche, LLP
Deborah Golden is a Principal in Deloitte & Touche LLP’s Security & Privacy Services practice, with over eighteen (18) years of information technology, security, and privacy experience encompassing various industries, with a specialization in Identity & Access Management, as well as within the Federal, Health Sciences, and Financial Services industries. Deborah previously served as the Deloitte & Touche LLP Security & Privacy leader for Health Plans to provide leadership in the definition and deployment of integrated solutions addressing compliance with regulatory requirements such as HITRUST, HIPAA, HITECH, and others; securing Electronic Health Record (EHR) privacy disclosures; protecting business critical applications, including process controls, application security, identity and access management, and data protection; and aligning information technology to these objectives. In addition to these activities, Deborah’s primary focus is acting as the Lead Delivery Principal for Technology Risk engagements, including the Department of Veterans Affairs (Identity and Access Management / Access Services (Product Development, Office of Information Technology); Privacy Support (Office of Privacy and Records Management); and Enterprise Physical Access Control (Office of Information Technology).
Lawrence O. Gostin, JD
Linda D. and Timothy J. O’Neill Professor of Global Health Law; Faculty Director
Center for Law and the Public's Health
Georgetown University Law Center
Lawrence O. Gostin, an internationally acclaimed scholar, is the Linda D. and Timothy J. O’Neill Professor of Global Health Law at the Georgetown University Law Center, where he directs the O’Neill Institute for National and Global Health Law. Prof. Gostin is the Director of the World Health Organization Collaborating Center on Public Health Law and Human Rights. He served as Associate Dean for Research at Georgetown Law, 2004-2008. He is also Professor of Public Health at the Johns Hopkins University and Director of the Center for Law & the Public’s Health at Johns Hopkins and Georgetown Universities.
Prof. Gostin holds a number of international academic professorial appointments. He is Professor of Global Health Law in the Faculty of Law, at the University of Sydney. He is Visiting Professor (Faculty of Medical Sciences) and Research Fellow (Centre for Socio-Legal Studies) at the University of Oxford, United Kingdom. Prof. Gostin is the Claude Leon Foundation Distinguished Scholar and Visiting Professor at the University of Witwatersrand, Johannesburg, South Africa (Nobel Laureate Selection Criteria).
Prof. Gostin serves on the Director-General’s Advisory Committee on Reforming the World Health Organization. In 2007, the WHO Director-General appointed Prof. Gostin to the International Health Regulations (IHR) Roster of Experts and the Expert Advisory Panel on Mental Health.
Prof. Gostin holds numerous editorial appointments in prestigious academic journals throughout the world. His principal position is the Health Law and Ethics Editor, Contributing Writer, and Columnist for the Journal of the American Medical Association.
Prof. Gostin holds three honorary degrees. In 1994, the Chancellor of the State University of New York conferred an Honorary Doctor of Laws Degree. In 2006, Her Majesty Queen Elizabeth II and the Vice Chancellor awarded Cardiff University’s (Wales) highest honor, an Honorary Fellow. In 2007, the Royal Institute of Public Health designated Prof. Gostin as a Fellow of the Royal Society of Public Health (FRSPH).
Prof. Gostin, an elected lifetime Member of the Institute of Medicine/National Academy of Sciences, serves on the Board on Health Sciences Policy, the Human Subjects Review Board, and the Committee on Science, Technology, and Law. He currently chairs the IOM Committee on National Preparation for Mass Disasters, and has chaired Committees on privacy, genomics, and prisoner research. The IOM awarded Prof. Gostin the Adam Yarmolinsky Medal for distinguished service to further its mission of science and health. He received the Public Health Law Association’s Distinguished Lifetime Achievement Award “in recognition of a career devoted to using law to improve the public’s health” presented at the CDC. Internationally, Prof. Gostin received the Rosemary Delbridge Memorial Award from the National Consumer Council (U.K.) for the person “who has most influenced Parliament and government to act for the welfare of society.” He also received the Key to Tohoko University (Japan) for distinguished contributions to human rights in mental health.
Prof. Gostin has led major law reform initiatives in the U.S., including the drafting of the Model Emergency Health Powers Act (MEHPA) to combat bioterrorism and the “Turning Point” Model State Public Health Act. He is also leading a drafting team on developing a Model Public Health Law for the World Health Organization. Prof. Gostin is currently engaged in three major international initiatives on global health governance: (1) a “Framework Convention on Human Services” for the World Bank—a multilateral treaty on the health care professional capacity in poor and middle income countries; (2) a “Framework Convention on Global Health”—a multilateral treaty ensuring “basic survival needs” for the world’s poor; and (3) a Global Plan for Justice—a voluntary global compact to fund essential medicines, basic survival needs, and climate change. He founded the Joint Learning Initiative on National and Global Responsibilities for Health (A Global Partnership for Fundamental Global Health Reform) featured in the World Health Report 2011.
In the United Kingdom, Lawrence Gostin was the Legal Director of the National Association for Mental Health, Director of the National Council of Civil Liberties (the UK equivalent of the ACLU), and a Fellow at Oxford University. He helped draft the current Mental Health Act (England and Wales) and brought several landmark cases before the European Commission and Court of Human Rights.
Prof. Gostin’s latest books are: Public Health Law and Ethics: A Reader (University of California Press, 2nd ed., 2010); Public Health Law: Power, Duty, Restraint (University of California Press, 2nd ed. 2008); Principles of Mental Health Law & Practice (Oxford University Press, 2010). He is currently working on a book for Harvard University Press, entitled: Global Health Law: International Law, Global Institutions, and World Health.
Chief Executive Officer
Bob Gregg joined ID Experts in January, 2009. Prior to that he was Executive Vice President of Worldwide Sales and Services for FEI Company, a $600 million public company in the nanotechnology tools business. Prior to joining FEI, Bob was the President and CEO for Unicru, Inc., a leading provider of hiring management software systems based in Beaverton, Oregon. Previously, for 16 years, Mr. Gregg was the Chief Financial Officer at Sequent Computer Systems, a global computer company, based in Beaverton, Oregon. In the initial founding group at Sequent, he was a key player in growing the company from a startup to over $800 million in revenue with sales in 55 countries. He was a key member of the executive team that drove the acquisition of Sequent by IBMM in 1999. Prior to Sequent, Gregg spent nine years at the international accounting firm Price Waterhouse. He is a C.P.A and a graduate of the University of Oregon.
Mr. Gregg is also on the Board of Trustees of Oregon Health Sciences University Foundation, board member of the Oregon Nanomaterials and Microscience Institute (ONAMI) as well as past President of the Board of the Oregon Historical Society and a board member of the Oregon Sports Authority, where he is heading the effort to bring the National Hockey League to Portland.
Adrian Gropper, MD
Chief Technology Officer
Patient Privacy Rights
Dr. Gropper is a pioneer in patient-centered and patient-controlled health records on the Internet. He holds an engineering degree from MIT and an MD form Harvard Medical School. Early work on telemedicine and picture archiving and communications systems (PACS) with Massachusetts General Hospital also introduced him to MIT's Guardian Angel project that many consider the parent of many of today's patient-facing technologies. In 1995, Dr. Gropper founded AMICAS (NAS:AMCS) as the first Web-based radiology PACS and the first to provide direct links to diagnostic imaging in electronic health records.
Dr. Gropper founded MedCommons in 2004 to develop software for image-enabled, patient-centered health records supporting all of a patient's caregivers. Dr. Gropper participated in many early standardization efforts including IHE, HITSP, Liberty Alliance and the Continuity of Care Record steering committee. He also serves on the Massachusetts Health Information Exchange Technology Workgroup, the Massachusetts Medical Society Committee for Information Technology and Markle Foundation panels. Currently he participates as a patient-access advocate in the NwHIN Direct Project and consults on image-enabling patient portals, NwHIN secure messages and electronic health records as well as health information technology in the cloud.
Cora Han, JD
Attorney, Division of Privacy and Identity Protection
Federal Trade Commission
Cora Tung Han is an attorney in the Federal Trade Commission’s Division of Privacy and Identity Protection where she investigates and prosecutes violations of federal laws protecting the privacy and security of consumer information, and works on related policy matters. Her law enforcement actions have included the Commission’s settlements with Twitter and Facebook. In addition, Cora was one of the principal authors of the FTC’s Health Breach Notification Rule. Prior to joining the FTC, Cora was an attorney with Wilmer Cutler Pickering Hale and Dorr LLP, where her practice focused on trademark, copyright, and media law. She is a graduate of the University of Chicago Law School.
Deborah Hurley is the Principal of the consulting firm she founded in 1996, which advises governments, international organizations, non-governmental organizations, and foundations on advanced science and technology policy. At the Organization for Economic Cooperation and Development, in Paris, France, she identified emerging legal, economic, social and technological issues related to information and communications technologies, biotechnology, environmental and energy technologies, nanotechnology, technology policy, and other advanced technology fields. She was responsible for drafting, negotiation and adoption of the OECD Guidelines for the Security of Information Systems. She directed the Harvard University Information Infrastructure Project. Hurley is Chair, Board of Directors, Electronic Privacy Information Center, and currently serves or has served on many other governmental and non-governmental boards and committees, including for the U.S. State Department, the American Association for the Advancement of Science, and the National Academy of Sciences Research Council. She carried out a Fulbright study of intellectual property protection and technology transfer in Korea. She is the author of Pole Star: Human Rights in the Information Society, “Information Policy and Governance” in Governance in a Globalizing World, and other publications. Hurley received the Namur Award of the International Federation of Information Processing in recognition of outstanding contributions, with international impact, to awareness of social implications of information technology.
David Jacobs, JD
Consumer Protection Counsel
Electronic Privacy Information Center
David Jacobs is the EPIC Consumer Protection Counsel. He focuses on representing consumers’ privacy interests before Congress, in the courts, and before federal regulatory agencies. He is a graduate of the University of Wisconsin—Eau Claire and Harvard Law School. At Harvard, he was involved with the Cyberlaw Clinic at the Berkman Center for Internet and Society, and worked as a research assistant to Professor John Palfrey. Before joining EPIC, he clerked at the United States Department of Justice, the American Civil Liberties Union, and the United States Senate Subcommittee on Antitrust, Competition Policy and Consumer Rights.
Chief Medical Information Officer
Dr. Anil Jain is Senior VP and Chief Medical Information Officer of Explorys, Inc., a Cleveland -‐ based BIG DATA healthcare analytics company formed in 2009 based on innovations that he developed while at the Cleveland Clinic. He leads Informatics and Analytics, Product Management, Training and Solutions Delivery.
Dr. Jain began his career at the Cleveland Clinic in 1995, most recently as Senior Executive Director of IT until July 2011 where he led several Health IT innovations, including programsto support research and quality informatics and created interactive dashboards to monitor the “meaningful use” of the Electronic Health Record. He continuesto practice medicine and teach medical residents as Consulting Staff at Cleveland Clinic’s Department of Internal Medicine. He was formerly co-‐Chair of the Information Management Committee of Better Health Greater Cleveland (BHGC), a Robert Wood Johnson Foundation Aligning Forces for Quality(AF4Q) Community. In addition, Dr. Jain had previously served as co-‐Director of the Biomedical Research Informatics core of the Clinical & TranslationalResearch Collaborative (CTSC) at the Case Western School of Medicine and Instructor at Cleveland Clinic Lerner College of Medicine.
Dr. Jain received his undergraduate Biomedical Engineering degree with Departmental Honors from Northwestern University’s Robert R. McCormick School of Engineering and Applied Science in 1991 specializing in both Electronic Instrumentation and Computing Applications. After obtaining his Medical Degree from Northwestern University’s Feinberg School of Medicine, he completed both his internship and residency training at the Cleveland Clinic. After completing his appointment as Chief Medical Resident, he joined the Staff in Department of Internal Medicine in 1999 and maintained an active medical practice at the Cleveland Clinic Main Campus supporting primary care as well as consultative medicine until 2011.
Dr. Jain also serves on the Board of Directors of Care Alliance, a Cleveland-‐based Federally Qualified Health Center (FQHC) and is on several advisory boards of Health IT companies across the country. He has authored more than 100 publications and abstracts and has given numerous talks at national and international meetings on the benefits of Health IT and how BIG DATA analytics can support quality improvement and biomedical research. He is a Diplomate of the American Board of Internal Medicine (ABIM), a Fellow of the American College of Physicians (ACP), and an active member of both the Health Information Management and Systems Society (HIMSS) and the American Medical Informatics Association (AMIA). Finally, he serves as a reviewer for several biomedical journals and national meetings.
He resides in Solon, Ohio with his wife, a free-‐lance writer, and three children.
Global Product Manager
Omar Khawaja has spent over a decade delivering, developing and managing enterprise security solutions. Recently, Khawaja has been building solutions around data protection, mobility and cloud security. In the past year, Khawaja has advised executives of the Global 1000 and spoken at industry conferences (RSA, CSA, ISF, MWC, ...) on the topic of making security more business-centric, on 5 continents. Khawaja has been quoted in media outlets such as Financial Times, NY Times and CNBC. Khawaja is a CCSK and CISSP; has a BS in electrical engineering from Georgia Tech and an MBA from University of Virginia's Darden School of Business.
Rev. J. Michael Little, JD
Friendship Baptist Church
The Reverend John Michael Little, a native of Detroit Michigan, felt a call to Christian ministry at the tender age of 19, was licensed to preach at age 20, and ordained at 26. Since then, he has served as a Youth Pastor, Christian Education Director, and for the last twenty years, as a Pastor at churches in New Jersey, Virginia, and here in Washington, DC, where he is the esteemed Pastor of Friendship Baptist Church. He is currently in great demand from churches and religious oorganizations as a preacher, lecturer, and teacher.
Reverend Little attended Morehouse College, where he graduated with honors, and earned a Master of Divinity degree from Virginia Union University. After much prayer, Reverend Little felt a “second” prophetic call to seek justice and liberty for the poor and oppressed of our society. In answer, he enrolled in Georgetown University Law Center, where he earned a Juris Doctor degree.
Upon graduation from Georgetown, Reverend Little went on to found Jeremiah’s Circle of Friends, Neighborhood Legal Clinic. JCF, a first of its kind church-based legal clinic, was born of Reverend Little’s belief that, “above all, the poor must have access to justice.” In partnership with the law firm, Kirkland & Ellis, JCF offers low-income residents of Washington DC, Maryland, and Virginia free legal services in a variety of civil matters. These include family, housing, consumer, and public benefits law.
On April 16, 2013, JCF formed a partnership with the Legal Aid Society of The District of Columbia, thereby broadening and strengthening its ability to serve the community.
Reverend Little also studied theology at the University of Kent at Canterbury, England, as a Luard Scholar, and Boston University School of Theology, in the school's Pastor-Scholar program. He is currently working toward his Doctor of Ministry degree at The Samuel Proctor School of Theology, Virginia Union University.
Kimberly Little, PhD
Director of Market Planning
Identity Management Solutions
Kimberly Little, Director of Identity Management Strategy, LexisNexis® Risk Solutions is responsible for identifying and guiding LexisNexis' solution response to the constantly evolving market needs for identity proofing and multiple factors authentication in commercial and government organizations.
With nearly 20 years of experience leading global business strategy, product management, and technology business consulting, Kim’s responsibilities have spanned collaborating on international standards, cross-industry best practices and benchmarking to developing best-of-breed solution offerings.
Kim is active in a number of broader industry initiatives ranging from serving on the Management Council of the Identity Ecosystem Steering Group (IDESG) to the Open Identity Exchange and the UT-Center for Identity. She is a graduate of Vanderbilt University and Otterbein University.
Mark Luker, PhD
Associate Director of the National Coordination Office
The Networking and Information Technology Research and Development Program (NITRD)
Dr. Mark A. Luker is the Associate Director of the National Coordination Office for the Networking and Information Technology Research and Development Program (NITRD). His appointment comes after joining the National Institute of Standards and Technology (NIST), Information Technology Laboratory (ITL). Prior to joining NIST, he served as a Telecommunications Policy Specialist at the National Telecommunications and Information Administration in the U.S. Department of Commerce on the Broadband Technology Opportunities Program (BTOP).
Dr. Luker has served as the Vice President (VP) of EDUCAUSE, an association of over 2,000 universities and colleges that promotes the transformation of higher education through innovative applications of information technology. As the VP, he led the Washington DC-based EDUCAUSE policy program as well as Net@EDU, a thought-leadership coalition of university Chief Information Officers (CIOs) and state network directors who work to advance national networking for both research and education.
Dr. Luker also served as the Program Director for advanced networking at the National Science Foundation and as the CIO of the University of Wisconsin-Madison campus. In this role, he was very active in several national projects including the National Learning Infrastructure Initiative and the Coalition for Networked Information.
Dr. Luker received his Ph.D. in Mathematics from the University of California, Berkeley. He served as a faculty member in computer science and as Acting Dean of Science and Engineering at the University of Minnesota, Duluth, before moving into information technology management.
Susan McAndrew, JD
Deputy Director for Health Information Privacy
Senior Policy Specialist
Office for Civil Rights
U.S. Department of Health & Human Services
Susan D. McAndrew is the Deputy Director for Health Information Privacy and Security, Office for Civil Rights (OCR) at the United States Department of Health and Human Services. As Deputy Director, Ms. McAndrew has responsibility for developing, implementing and enforcing the HIPAA Privacy, Security, Breach Notification, and Enforcement Rules. She began her work on the HIPAA Privacy Rule for HHS in May 2000 and serves as the senior advisor to the Director of OCR on health information privacy matters. Ms. McAndrew has over 20 years of federal government experience. Ms. McAndrew received her J.D. from Georgetown University Law Center.
John McDaniel has more than 35 years of experience as a healthcare CIO, consulting services executive and as an executive with large healthcare solution companies. John currently works with NetApp and is responsible for cultivating C-level executive relationship, understanding emerging requirements and collaborating with the development teams at NetApp to ensure NetApp's solutions meet market-driven operational, scalability and cost efficiency requirements. John also manages NetApp's partnerships with large healthcare GSI’s. As a CIO, John worked with St. Vincent Catholic Medical Center, McLaren Health Care Corporation and The Emory Clinic where he also served as Director of Medical Informatics. John served as a member of the Board of Directors for NYC-based HIE: NYCLIX. As a consulting services executive he worked with Dell Services, Deloitte Consulting and EMR Transitions. Serving the clinical applications space, John has worked with Siemens as Project Director and was SVP at, McKesson. Additionally John worked closely with Cerner where he led the partnership to develop the first multi-hospital CDR. John is very familiar with Big Data applications and infrastructure requirements. While at McLaren his team was the first healthcare organization to take medical records paperless in a multi-hospital system. He is a frequent speaker at National and Regional healthcare conferences.
Division of Privacy and Identity Protection
Federal Trade Commission, Bureau of Consumer Protection
Maneesha Mithal is the Associate Director of the Federal Trade Commission(s Division of Privacy and Identity Protection. In this capacity, she supervises work in the area of data security, identity theft, credit reporting, behavioral advertising, and general privacy. She has held numerous positions at the Federal Trade Commission, including Chief of Staff of the Bureau of Consumer Protection and Assistant Director of the International Division of Consumer Protection. Prior to joining the Federal Trade Commission in 1999, Ms. Mithal was an attorney at the Washington law firm of Covington & Burling, where she practiced in the commercial litigation, international litigation, and legislative areas. Ms. Mithal earned her law degree from the Georgetown University Law Center and her undergraduate degree from Georgetown University.
Pablo Molina, PhD
A native of Madrid, Spain, Pablo G. Molina is Associate VicePresident for Information Technologies since 2007 and campus CIO since 2000 at Georgetown University. Prior to that, he worked as director of information technology for the University of Pennsylvania Law School, lecturer/director of information systems for Washington University in Saint Louis School of Law, and senior lecturer for the University of Missouri in Saint Louis Business School. Before his career in academia, he was MIS manager at the Saint Louis Zoo. Prior to that, he created and managed a technology company in Madrid, where he also served as Editor in Chief of computer magazines, authored several books on technology, and taught information technology at the Escuela de Hacienda Publica.
Pablo has Bachelor's and Master's degrees from Saint Louis University, has done graduate coursework at the University of Pennsylvania and Washington University in Saint Louis, and is pursuing a Doctorate degree at Georgetown University. He is a Microsoft Certified Systems Engineer, a Certified Novell Engineer, a Certified Information Systems Security Professional, and a Certified Information Privacy Professional.
He regularly speaks at conferences on technology in law and higher education, like the Computer Assisted Legal Instruction, American Bar Association, Bricks and Bytes, American Association of Law Schools, American Association of Law Libraries, and EDUCAUSE. He is the recipient of the 2001 Excellence in Service CALI Award. Pablo recently served on national higher education committees like the Facilities Committee of the ABA's Legal Education and Admissions to the Bar Section and as chair of the EDUCAUSE's Evolving Technologies Committee. In 2001, Pablo Molina founded the Law CIO Group, a group of information officers from the top law schools in the United States and the United Kingdom. He was the recipient of the 2006 CIO Magazine Ones to Watch Award and the Standout Achievement Award as Innovator and was recognized in 2007 as one of the Top 40 Under 40 IT Innovators by ComputerWorld. He was nominated for the Mid-Atlantic Information Security Executive of the Year and the National Information Security Executive of the Year awards in 2007. In 2008, his profile was published in Hispanic Engineer and Information Technology's Tech Leaders You Need to Know and he was recognized as one of the top 100 technology executives by the Hispanic Technology Council. He was featured in Madrilenos por el Mundo on Telemadrid in November of 2008.
Pablo regularly serves as a consultant on organizational and technology policy issues for some of the most prestigious academic institutions.
Scott Monteith, MD
Physician & Medical Informaticist
Michigan State University
Scott Monteith, MD, is a graduate of the University of Michigan and Michigan State University. He is board-certified in psychiatry, a Fellow of the American Psychiatric Association (FAPA), and a Clinical Assistant Professor in the departments of Psychiatry and Family Medicine at Michigan State University. He has worked with his local community mental health center for over 20 years, and is a founder of Behavioral Medicine Associates, PLLC, a psychiatric group practice.
Dr. Monteith's interest in health information technology (HIT) spans 25 years, including serving as a CCHIT Juror, being appointed to three consecutive terms by Michigan's Governor to the Controlled Substances Advisory Commission (which oversees the Michigan Automated Prescription System), testifying before the ONC, performing as a member of the first Business Operations workgroup in the Michigan Health Information Network, founding the Insurance Institute for HIT Safety, and consulting. He has been quoted in the New York Times, Boston Globe, Huffington Post, Bloomberg, Psychiatric Times, and various other media outlets. He extensively uses HIT in his clinical practice, but recognizes that HIT implementations can be costly with negative ROIs, patient safety and privacy concerns, reductions in efficiency, and other serious challenges. He encourages a nuanced and incremental approach to HIT, with a focus on clear goals, a recognition of HIT's serious challenges, and avoidance of an approach that leads to the "tail wagging the dog" through pursuit of HIT policy du jour.
Sherri Morgan, JD
Legal Defense Fund
National Association of Social Workers
Sherri L. Morgan, MSW, JD, is Associate Counsel to the National Association of Social Workers (NASW) Legal Defense Fund (LDF) and Office of Ethics and Professional Review. NASW is the largest professional association of social workers in the world with nearly 140,000 individual members. Morgan advises NASW’s national and state leaders and staff on legal, ethical and policy issues and responds to social workers’ legal concerns nationally. She has written and edited numerous legal reference publications for social workers, including titles in the NASW Law Notes Series and 110 LDF “Legal Issue of the Month” articles. She has primary responsibility for the Association’s HIPAA privacy and security resources and national HIPAA training materials for member social workers. Morgan facilitates NASW’s participation as amicus curiae in significant legal cases in state and federal appellate courts, including such issues as confidentiality of mental health records, psychotherapist-patient privilege, and client decision-making autonomy. With training and experience as both an attorney and a clinical social worker, she has previously served as the legislative liaison for the Maryland Chapter of NASW and as a clinician and manager for Family & Children’s Services in Baltimore, Maryland. Morgan holds a Master of Social Work degree and a Juris Doctor from the University of Maryland in Baltimore.
Principal Deputy National Coordinator
Office of the National Coordinator for Health IT
U.S. Department of Health & Human Services
David Muntz serves as the Principal Deputy National Coordinator at the Office of the National Coordinator for Health Information Technology (ONC), U.S. Department of Health and Human Services in Washington, DC. In this role, David works directly with the National Coordinator, Dr. Farzad Mostashari, and oversees the activities of the four offices within ONC: Office of the Deputy National Coordinator for Programs and Policy; Office of the Deputy National Coordinator for Operations; Office of Economic Analysis, Evaluation, and Modeling; and the Office of the Chief Scientist.
Prior to joining ONC, David was the Senior Vice President and Chief Information Officer for the Baylor Health Care System, and was responsible for more than 730 information services employees who cared for a delivery system with more than 280 points of entry. For the first 18 years of his career, David worked at the Wadley Research Institute and Blood Bank in Dallas, Texas, an organization whose entities included a hospital, outpatient facilities, research institute, computer institute, and the blood bank for Dallas County, starting as a biostatistician and ultimately assuming the role of CEO. He returned to health care information technology (IT) at Texas Health Resources, where he functioned as Senior Vice President and Chief Information Officer for 15 years.
David has had vast practical experience with electronic health records and strong leadership skills. He was recognized nationally for innovation in information technology every year for more than 20 years. His most recent national recognition was by Information Week 500 in 2011, where he was on the inaugural list of the "Top 25 Most Influential Leaders in Healthcare IT." He was also profiled as one of eight "Health IT Leaders to Watch" by Health Data Management in 2011.
David received an MBA from Southern Methodist University in Dallas, Texas and an AB degree in pre-medicine with a concentration in English from Columbia College in New York City.
Aasim Padela, MD
Assistant Professor of Medicine
Emergency Medicine & General Internal Medicine
University of Chicago
Dr. Aasim Padela is an Assistant Professor of Medicine and the Director of the Initiative on Islam and Medicine at the University of Chicago. He also serves as faculty at the MacLean Center for Clinical Medical Ethics there. Dr. Padela’s scholarship focuses on the intersection of religion, ethics, and minority health through the experiences of American Muslim patients and healthcare providers. His empirical community research examines how Islamic beliefs, values and sense of identity influence Muslim patients health behaviors particularly as it relates to preventive health screening and organ donation practices. As a current Templeton Foundation Faculty Scholar he is conducting a national study of American Muslim physicians focusing on the ways Islam informs their professional identities and expereinces. His normative bioethics research engages with the philosophical and ethical traditions of Islam as they relate to conceptions of healing and the moral formation of the physician-healer and provides guidelines for an Islamic bioethics.
Dr. Padela completed undergraduate degrees in Biomedical Engineering and Classical Arabic & Literature at the University of Rochester, an MD from Weill Cornell Medical College, and an MS in health research from the Univ. of Michigan. His Islamic studies training began at Darul Harunia, a traditional seminary, and have continued via private tutoring and online academies with traditional 'ulema in Islamic theology, fiqh, and Qur'anic studies. Notably in 2010 he was also a Visiting Fellow at the Centre of Islamic Studies at Oxford University working on projects related to Islamic theological ethics and moral obligation and continues his studies and Islamic bioethics work with scholars at Darul Qasim in Chicago.
Frank Pasquale, JD
Schering-Plough Professor in Health Care Regulation and Enforcement
Seton Hall University School of Law
Frank Pasquale has taught information and health law at Seton Hall since 2004. He has published over 20 scholarly articles, and is currently writing a book called The Black Box Society: Technologies of Search, Reputation, and Finance (under contract with Harvard University Press). Pasquale’s research agenda focuses on challenges posed to information law by rapidly changing technology, particularly in the health care, internet, and finance industries.
Pasquale has been a Visiting Fellow at Princeton’s Center for Information Technology, and a Visiting Professor at Yale Law School and Cardozo Law School. He was a Marshall Scholar at Oxford University. He has testified before the Judiciary Committee of the House of Representatives, appearing with the General Counsels of Google, Microsoft, and Yahoo. He has also presented before a Department of Health & Human Services/Federal Trade Commission Roundtable and panels of the National Academy of Sciences.
Pasquale is a member of the Harvard-Georgetown Working Group on Market Democracy, and an Affiliate Fellow of Yale Law School’s Information Society Project. He has been named to the Advisory Board of the Electronic Privacy Information Center. He is on the executive board of the Health Law Section of the American Association of Law Schools (AALS), and has served as chair of the AALS section on Privacy and Defamation. He has blogged at Concurring Opinions since 2006, and he also writes at Balkinization, Madisonian, Health Reform Watch, and the Health Law Profs Blog. He has been quoted in the Financial Times, New York Times, Economist, CNN, and many other media outlets, and has written for the Boston Review.
Deborah C. Peel, MD
Founder & Chair
Patient Privacy Rights
Dr. Peel has been a practicing as a physician and psychoanalyst for over thirty years. She is the leading national and international advocate for patients' rights to control access to sensitive personal health information. She began working on health privacy rights during the Clinton Healthcare Initiative in 1993, which required every doctor-patient visit to be recorded in a national health data base, even if patients paid out-of-pocket for treatment .
In 2004, she formed Patient Privacy Rights (PPR), http://www.patientprivacyrights.org, which has become the nation’s and the world's leading consumer health privacy advocacy organization. PPR has over 12,000 members in all 50 states, and leads the bi-partisan Coalition for Patient Privacy, representing over 10.3 million Americans.
William Pewen, PhD
Assistant Professor of Public Health
Dr. William Pewen is Assistant Professor of Public Health and Family Medicine at Marshall University. Pewen holds both a doctorate in Infectious Diseases and Microbiology and M.P.H. in Epidemiology from the University of Pittsburgh. His work has included cardiology research at UC San Diego as well as the Veterans Administration, where he also worked in early efforts to create an electronic health record. Dr. Pewen subsequently developed both systems and applications software used in research and medical applications. He has made significant contributions in HIV/SIV vaccine development and immunology in non-human primates, as well as clinical investigation in the use of antiretroviral drugs in HIV/AIDS.
In 2003, Dr. Pewen was named a Congressional Fellow of the American Society for Microbiology. He subsequently served as Senior Health Policy Advisor to U.S. Senator Olympia J. Snowe (R-ME) until 2010. His congressional legislative and oversight work included a broad spectrum of health policy including Medicare and Medicaid issues, health information technology, genetic discrimination, biosecurity, and pharmaceutical policy, and culminated in work in the creation of health reform legislation which formed the core of the enacted Patient Protection and Affordable Care Act (ACA).
Dr. Pewen’s interests include study in the comparative value of health care alternatives, drug safety and access issues, HIV vaccines and therapeutics. His work in the passage of the Genetic Information Nondiscrimination Act of 2008 led to further work in drafting of the HITECH Act to ensure the security and privacy of electronic health records. More recently, Dr. Pewen has undertaken efforts to address issues of research consent and broader civil rights implications of the use of health information. His health policy writing has been featured in the New York Times, Health Affairs and The Atlantic.
Joy Pritts, JD
Chief Privacy Officer
Office of the National Coordinator for Health IT
Department of Health and Human Services
Joy Pritts joined the Office of the National Coordinator for Health Information Technology (ONC) in February 2010 as Chief Privacy Officer. Ms. Pritts provides critical advice to the Secretary and the National Coordinator in developing and implementing ONC’s HITECH privacy and security programs.
Prior to joining ONC, Ms. Pritts was on the faculty at Georgetown University where she held a joint appointment as a Senior Scholar with the O’Neill Institute for National and Global Health Law and as a Research Associate Professor with the Health Policy Institute. Her work has focused on the critical issues surrounding the privacy of health information and patient access to medical records at both the federal and state levels. She has written extensively on such topics as the HIPAA Privacy Rule, federal alcohol and substance abuse confidentiality laws, and the confidentiality of health information in research. She has worked closely with national consumer organizations and federal policymakers on ensuring the protection of health information. Ms. Pritts has most recently participated in a number of federal HIT initiatives including serving on the Technical Advisory Panel for the multi-state Health Information Security and Privacy Collaborative (HISPC) and as a board member of the National Governors Association’s State Alliance for e-Health.
Ms. Pritts holds a law degree from Case Western Reserve University School of Law, and a Bachelor of Arts degree from Oberlin College.
James C. Pyles, JD
Co-Founder & Principal
Powers, Pyles, Sutter, & Verville
Jim Pyles, a co-founder of the firm and has more than thirty-five years of experience in litigation, counseling, and lobbying in the field of health law. Upon graduating from law school, Mr. Pyles served for six years in the Office of the General Counsel for the US Department of Health, Education, and Welfare, where he received the department's Distinguished Service Award for successfully handling complex Medicare litigation.
Mr. Pyles has experience in nearly all areas of the firm's practice, but he is nationally known for his expertise with respect to the legal issues related to health information technology and health information privacy, chronic care coordination, home health, hospice, and ambulatory care services. He is also a registered lobbyist for several health care associations and participates intensively in health reform at the federal and state levels. He has crafted major pieces of health care legislation in many areas covered by the Medicare Act.
Mr. Pyles' expertise encompasses the legislative and regulatory aspects of government and private health insurance coverage and reimbursement; the legal aspects of acquisitions, mergers, joint ventures, and networks; and the law pertaining to fraud and abuse. He writes and lectures frequently on health reform issues and appears periodically on national television as a health care commentator.
Mr. Pyles serves as counsel to several national mental health and state home care associations and is a member of the Board of Directors of a national physician house call association.
Patricia Rehmer, MSN
Department of Mental Health & Addiction Services
Jordan Robertson is a technology writer in the San Francisco office of Bloomberg News, covering security, privacy and health data issues. He previously worked at The Associated Press, covering enterprise computing. His recent projects have included Putting Patient Privacy at Risk, a series that ran in 2012 and included stories on hackers extorting doctors by stealing their electronic medical records; data-mining techniques used to find the mystery causes of some diseases; and the quiet collection of millions of patients' data as part of state-run health information exchanges. His work appears across Bloomberg's media properties, including the Bloomberg newswire, Bloomberg.com, Bloomberg Businessweek and Bloomberg TV.
Ronald Ross, PhD
Computer Scientist, NIST Fellow
National Institute of Standards & Technology
Ron Ross is a Fellow at the National Institute of Standards and Technology (NIST). His current areas of specialization include information security and risk management. Dr. Ross leads the Federal Information Security Management Act (FISMA) Implementation Project, which includes the development of security standards and guidelines for the federal government, contractors, and the United States critical information infrastructure. His recent publications include Federal Information Processing Standards (FIPS) Publication 199 (security categorization standard), FIPS Publication 200 (security requirements standard), NIST SP 800-39 (risk management guideline), NIST Special Publication (SP) 800-53 (security controls guideline), NIST SP 800-53A (security assessment guideline), NIST SP 800-37 (security authorization guideline), and NIST SP 800-30 (risk assessment guideline). Dr. Ross is the principal architect of the Risk Management Framework and multi-tiered approach that provides a disciplined and structured methodology for integrating the suite of FISMA standards and guidelines into a comprehensive enterprise-wide information security program. Dr. Ross also leads the Joint Task Force Transformation Initiative, a partnership with NIST, the Department of Defense, the Intelligence Community, the Office of the Director National Intelligence, and the Committee on National Security Systems to develop a unified information security framework for the federal government.
In addition to his responsibilities at NIST, Dr. Ross supports the U.S. State Department in the international outreach program for information security and critical infrastructure protection. Dr. Ross previously served as the Director of the National Information Assurance Partnership, a joint activity of NIST and the National Security Agency. A graduate of the United States Military Academy at West Point, Dr. Ross served in a variety of leadership and technical positions during his over twenty-year career in the United States Army. While assigned to the National Security Agency, he received the Scientific Achievement Award for his work on an inter-agency national security project and was awarded the Defense Superior Service Medal upon his departure from the agency. Dr. Ross is a three-time recipient of the Federal 100 award for his leadership and technical contributions to critical information security projects affecting the federal government and is a recipient of the Department of Commerce Gold and Silver Medal Awards. Dr. Ross has been inducted into the Information Systems Security Association (ISSA) Hall of Fame and given its highest honor of ISSA Distinguished Fellow. Dr. Ross has also received many private sector cyber security awards and recognition including the Applied Computer Security Associates (ACSA) Distinguished Practitioner Award, the Vanguard Chairman’s Award, the Symantec Cyber 7 Award, InformationWeek’s Government CIO 50 Award, Best of GTRA Award, ISACA National Capital Area Conyers Award, SC Magazine’s Cyber Security Luminaries, and Top 10 Influencers in Government IT Security. During his military career, Dr. Ross served as a White House aide and as a senior technical advisor to the Department of the Army. Dr. Ross is a graduate of the Defense Systems Management College and holds Masters and Ph.D. degrees in Computer Science from the U.S. Naval Postgraduate School specializing in artificial intelligence and robotics.
Marc Rotenberg, JD
Electronic Privacy Information Center (EPIC)
Marc Rotenberg is Executive Director of the Electronic Privacy Information Center (EPIC) in Washington, DC. He teaches information privacy law at Georgetown University Law Center and has testified before Congress on many issues, including access to information, encryption policy, consumer protection, computer security, and communications privacy. He testified before the 9-11 Commission on "Security and Liberty: Protecting Privacy, Preventing Terrorism." He has served on several national and international advisory panels, including the expert panels on Cryptography Policy and Computer Security for the OECD, the Legal Experts on Cyberspace Law for UNESCO, and the Countering Spam program of the ITU. He currently chairs the ABA Committee on Privacy and Information Protection. He is the former Chair of the Public Interest Registry, which manages the .ORG domain. He is editor of Privacy and Human Rights and The Privacy Law Sourcebook, and co-editor (with Daniel J. Solove and Paul Schwartz) of Information Privacy Law (Aspen Publishing 2007). He is a graduate of Harvard College and Stanford Law School. He served as Counsel to Senator Patrick J. Leahy on the Senate Judiciary Committee after graduation from law school. He is a Fellow of the American Bar Foundation and the recipient of several awards including the World Technology Award in Law. A tournament chess player, Marc won the 2007 Washington, DC Chess Championship.
Mark Rothstein, JD
Herbert F. Boehl Chair of Law & Medicine, Founding Director
Institute for Bioethics, Health Policy and Law
University of Louisville School of Medicine
Mark A. Rothstein holds the Herbert F. Boehl Chair of Law and Medicine and is the Founding Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine. He received his B.A. from the University of Pittsburgh and his J.D. from Georgetown University. Professor Rothstein has concentrated his research on bioethics, genetics, health privacy, public health law, and employment law. From 1999-2008, he served as Chair of the Subcommittee on Privacy and Confidentiality of the National Committee on Vital and Health Statistics, the statutory advisory committee to the Secretary of Health and Human Services on health information policy. He is past president of the American Society of Law, Medicine and Ethics.
He is the author or editor of 19 books and nearly 200 book chapters and articles in leading journals of bioethics, law, medicine, and public health. His latest book is Employment Law (with Craver, Schroeder, & Shoben)(Thomson/West, 4th ed., 2009).
Theodore Ruger, JD
Professor of Law
University of Pennsylvania Law School
Theodore Ruger, JD, is a professor at the University of Pennsylvania Law School, where he teaches and writes in the fields of health law, constitutional law, food and drug law, and statutory interpretation. Before joining Penn Law’s faculty in September 2004 Ruger was a law professor for three years at Washington University in St. Louis, and prior to that practiced health law and general litigation at Williams & Connolly in Washington, D.C and Ropes & Gray in Boston. Ruger clerked for Justice Stephen Breyer on the U.S. Supreme Court and Judge Michael Boudin on the U.S. First Circuit Court of Appeals. In fall 2012 he was Visiting Professor of Law at New York University School of Law.
David "Doc" Searls
Director of Project VRM
CITS, University of California, Santa Barbara
Doc Searls is the author of The Intention Economy: When Customers Take Charge (Harvard Business Review Press, 2012), and co-author of The Cluetrain Manifesto: The End of Business as Usual (Basic Books, 2000, 2010). He is also Senior Editor of Linux Journal, a fellow at the Center for Information Technology & Society at UC Santa Barbara, and founder of ProjectVRM at the Berkman Center for Internet & Society at Harvard University, where he served as a fellow from 2006 to 2010. Currently, he is a visiting scholar at the Arthur L. Carter Journalism Institute at NYU.
Brian Selfridge, CISSP
Currently, Brian serves as Managing Director at Meditology Services. Meditology is a professional services company that achieves successful outcomes to a healthcare organization’s technology challenges by providing experienced professionals who deliver high-quality, reliable, and responsive services.
Brian is responsible for Meditology’s IT Risk Management Services practice which is dedicated to delivering expertise and leadership in information privacy and security, compliance, and audit, specifically for healthcare.
Prior to joining Meditology, Brian served as the Chief Information Security Officer (CISO) for AtlantiCare, an integrated Healthcare Provider based in New Jersey. As CISO, Brian was responsible for the coordination of an enterprise-wide Information Security strategy and vision designed to safeguard the confidentiality, integrity, and availability of patient health information and systems.
Brian has previous experience serving as a Senior Security Consultant with PricewaterhouseCoopers, LLP. He advised mid- to large-size organizations on the development and execution of information security programs including providing services in security and vulnerability assessments, identity and access management, IT strategy, database security, web and application security, security attack & penetration testing, electronic health records security, health information exchange services, and project management.
Brian served as one of the founding members of the Anti-Spam investigation unit for the Pennsylvania Office of Attorney General, Bureau of Consumer Protection. He investigated and prosecuted sources of unsolicited emails for Pennsylvania residents. These responsibilities included interfacing with federal agencies such as the FTC and DOJ to investigate and prosecute claims.
Brian is a Certified Information Systems Security Professional (CISSP) through the International Information Systems Security Certification Consortium (ISC2).
Brian is also certified by the National Security Agency (NSA) & Committee on National Security Systems (CNSS) in Information Systems Security & Information Assurance.
Doctor Patient Medical Association
Kathryn Serkes is Chair and Co-Founder of the Doctor Patient Medical Association (DPMA) and the Patient Power Alliance, the first national group of patients AND doctors working for freedom in medicine, which was prompted by grassroots activism during the debate on healthcare reform in 2009-2010. She was one of the chief strategists organizing the efforts against socialized medicine legislation, speaking at more than 35 rallies and town halls, and appearing on numerous radio and television shows.
For more than 16 years, she served as public affairs and policy consultant for the Association of American Physicians and Surgeons, representing that group during it’s litigation against the Hillary Clinton and the White House Health Care Task Force, and helping to spur the national coalition that lead to the defeat of the Clinton health plan.
Appointed by four Administrations to serve at the Federal Emergency Management Agency, she received that agency’s highest recognition, the “Director’s Award for Meritorious Service.” An Emmy-award winning producer and reporter before founding Square One, her academic credentials include the faculty of Bellevue Community College and Guest Lecturer at George Washington University Graduate School of Political Management.
Her writing has appeared in publications such as the Wall Street Journal, USA Today, The Hill and The Journal of American Physicians and Surgeons, and she’s been a guest on shows such as “Larry King Live,” “The Today Show” and “The O’Reilly Factor.” She is co-author of “Patient Power: The Patient’s Handbook.”
Ms. Serkes sits on the Health and Human Services Task Force of the American Legislative Exchange Council, the largest bi-partisan association of state legislators. She is founder and chair of the “Coalition Against Prosecutorial Abuse” to rein in government trial lawyers – the criminal companion to civil tort reform; “Hands Off Our Kids Coalition” to halt government-mandated vaccines, and sits on the Advisory Board of GOProud.
Kathryn is also president and founder of Square One Media Network, a strategic communications firm serving clients such as Boeing, Sheraton Hotels, Continental Airlines, Time- Warner Communications and numerous political campaigns since 1985. Offices are located in Seattle and Washington D.C.
The New York Times
Natasha Singer is a reporter for the Sunday Business section of The New York Times where she covers the business of consumer data and writes a monthly column called Slipstream. Her Sunday Business series on the surveillance economy, called “You for Sale,” won a 2012 Best in Business award for personal finance journalism from the Society of American Business Editors and Writers.
Ms. Singer previously covered the pharmaceutical industry and medical ethics, also for the Business section. She was part of a team at The Times whose investigative series on cancer, "The Forty Years War," was a finalist for a Pulitzer Prize in explanatory reporting in 2010. She also developed the Skin Deep column for the Times’ Thursday Styles section, where she covered the beauty industrial complex.
Prior to joining The Times in 2005, she was a correspondent for Outside Magazine, covering the environment and biodiversity, and was a health and beauty editor at W Magazine. She also worked in Russia as the Moscow bureau chief of The Forward, the editor-at-large of Russian Vogue, and a correspondent for Women’s Wear Daily.
David Staggs, JD
Chief Technology Officer
Jericho Systems Corporation
Chief Technology Officer (CTO) David Staggs is a computer engineer and patent attorney with 30 years of experience in engineering information systems, defining business requirements, leading teams, and developing security standards. Prior to joining Jericho, Staggs managed a team supporting the Nationwide Health Information Network (NwHIN) / Virtual Lifetime Electronic Record (VLER) project sponsored by the Veterans Health Administration (VHA) within the Department of Veterans Affairs (VA).
Staggs holds a J.D. from Thomas Jefferson School of Law, two B.A.s from University of California, Santa Cruz, and certification as an Information Systems Security Professional (CISSP). He has authored eight technical standards.
Latanya Sweeney, PhD
Nicolas P. Terry, JD
Hall Render Professor of Law and Co-Director of the Hall Center for Law and Health
Indiana University McKinney School of Law
Nicolas P. Terry is The Hall Render Professor of Law at the Indiana University Robert H. McKinney School of Law. He serves as Co-Director of the Hall Center for Law and Health. Professor Terry teaches Torts, Products Liability, Health Information Technology, Law & Science, and Health Care Quality. Educated at Kingston University and the University of Cambridge, Professor Terry began his academic career as a member of the law faculty of the University of Exeter in England before joining the faculty at Saint Louis University School of Law. From 1996-1997 he was Director of Legal Education at LEXIS-NEXIS. He has been a Senior Fellow at Melbourne Law School and held visiting faculty positions at the law schools of Santa Clara University, the University of Missouri-Columbia, Washington University, and the University of Iowa. From 2000 to 2008 Professor Terry served as Co-director of Saint Louis University’s Center for Health Law Studies and from 2008 to 2010 as the School of Law’s Senior Associate Dean. Professor Terry’s research interests lie primarily at the intersection of medicine, law, and information technology. He is one of the permanent bloggers at the HealthLawProf blog.
Aaron Titus, JD
Chief Privacy Officer
Aaron Titus is an attorney specializing in Internet, Technology and Privacy law, and the Chief Privacy Officer for Identity Finder. Before coming to Identity Finder, Aaron spent four years as the Privacy Director for the Washington DC policy institute Liberty Coalition. Mr. Titus developed Privacy Commons: An emerging national framework for creating complete, informative, enforceable, and easy to adopt privacy policies. He also developed NationalIDWatch.org, where you can search for your name to find out whether your personal information has been breached.
Mr. Titus is a member of a broad range of working groups, policy organizations, and privacy standards development organizations, including the Identity Ecosystem Steering Group, Privacy Coalition, several Kantara Privacy working groups, the Identity Commons Stewards Working Group, and others.
As an attorney he has consulted organizations on legal requirements, risk identification, risk management, and developing a corporate culture of privacy. In May, 2010 he testified before the Senate Committee on Homeland Security and Government affairs.
Micky Tripathi, PhD
President & CEO
MA eHealth Collaborative
Micky Tripathi is the President & Chief Executive Officer of the Massachusetts eHealth Collaborative (MAeHC), a non-profit collaboration of 34 leading Massachusetts organizations. He is also Chairman of the Board of Directors of the eHealth Initiative, a national organization promoting health information technology, the Chair of the Information Exchange Working Group of the national Health Information Technology Policy Committee, which is providing recommendations to the federal government on health information exchange requirements related to the HITECH Act, and a member of the Board of Directors of the New England Health Exchange Network (NEHEN), a regional health information exchange based in Waltham, Massachusetts.
Prior to joining MAeHC, Mr. Tripathi was a manager in the Boston office of the Boston Consulting Group, a leading strategy and management consulting firm. While at BCG, he served as the founding President and CEO of the Indiana Health Information Exchange, an Indianapolis-based non-profit company partnered with the Regenstrief Institute to create a state-wide health information infrastructure in the state of Indiana. As a manager in BCG’s health care practice, Mr. Tripathi also served a variety of US and international clients in the non-profit sector as well as in the bioinformatics, biotechnology, and pharmaceutical industries.
He holds a Ph.D. in political science from the Massachusetts Institute of Technology, a Master of Public Policy from Harvard University, and an AB in political science from Vassar College. Prior to receiving his Ph.D., he was a senior operations research analyst in the Office of the Secretary of Defense in Washington, DC, for which he received the Secretary of Defense Distinguished Civilian Service Award.
Bill Turner, CICISO
Chief Privacy & Security Officer
Mr. Turner is a Senior Leader with over 20 years of Healthcare Privacy, Security and Information Technology experience leading, building and protecting health information. Mr. Turner’s expertise is in analyzing the additions and changes to new federal and state regulations, affecting privacy and security. He works with his clients to help them understand the operational implications of these changes.
Before joining Allium, Bill held positions as Chief Security Officer for APS Healthcare, serving 22 million lives across the U.S. and Puerto Rico. He was Director of Technology and Strategy for a 90 county children’s hospital system and Director of Client Enterprise Services for VHA a network of 1,800+ community-owned hospitals and 8,000+ physicians. He also worked in the defense industry working in Advanced Electronic Warfare.
Mr. Turner holds a degree in Social Work with an emphasis on social statistics from the University of Texas at Arlington. He has completed advanced coursework at Kellogg School of Business, Southern Methodist University, MIT, and Harvard Business School. He has current and advanced training in physical, technical and personal security, privacy, and security safeguards including computer forensics. Mr. Turner is a member of the Healthcare Compliance Association (HCCA), International Association of Privacy Professionals (IAPP), EC-Council, Infragard, Health Information Management System Society (HIMSS), American Society for Industrial Security (ASIS), HIPAA – COW (Council of Wisconsin), and has been the Past Chapter President of Microcomputer Managers Association and Past Director for DFW chapter of AFEWS (Association of Old Crows-Electronic Warfare).
Gen. Kelsang Varahi
Vajrayogini Buddhist Center
Western Buddhist nun Gen Kelsang Varahi is a close disciple of Geshe Kelsang Gyatso, a renowned Buddhist Master and founder of the New Kadampa Tradition. She was appointed Resident Teacher at Vajrayogini Buddhist Center by Geshe Kelsang in 2000. She has been teaching Buddhism in the Washington, DC and metropolitan area for over 17 years and given public talks around the country and on the radio. Prior to her ordination, she was a graduate of Georgetown University Medical School and practicing physician with over 22 years of experience.
Gen Varahi brings sharp humor to her teachings on Buddhism and to her examples for applying Buddhist principles in daily life. She is remarkable in her love for studying the Dharma and how accessible her teachings are to her students.
Ronald S. Walters, MD
Associate VP of Medical Operations & Informatics
Professor of Clinical Medicine
Medical Director, Managed Care Programs
Medical Director Case Management Program
University of Texas MD Anderson Cancer Center, Houston, TX
Ron Walters is an associate vice president of medical operations and informatics at The University of Texas MD Anderson Cancer Center in The Texas Medical Center, applying more than 30 years of experience and knowledge here at MD Anderson.
Dr. Walters is a breast medical oncologist and is responsible for the professional aspects of Clinical Operations including Medical Informatics, the Tumor Registry, the Transfer Center, Managed Care Programs, Uncompensated Charity Care, Clinical Safety and Effectiveness and our Physicians Network. He serves on multiple institutional committees striving for improvements in patient care, research and our support systems.
Dr. Walters’ pursued his MBA at the University of Houston. When he realized it didn’t cover enough of the health care administration aspects, he went for a Masters degree too. It was in business school where he really learned to appreciate that a different perspective was obtained if you had some hands-on experience in the profession. He completed a masters program in the management of computing and information systems at Houston Baptist University.
Dr. Walters’ considers himself a productive member of a great team with great leadership at MD Anderson Cancer Center.
Candice Weatherly, JD
Compliance & Privacy Manager
CenterLight Health System
Candice Weatherly is the Compliance and Privacy Manager for CenterLight Health System, an integrated Long Term Care provider and Managed Long Term Care Organization in New York. Ms. Weatherly is responsible for managing CenterLight’s Privacy Program, including developing and administering all HIPAA training programs, conducting privacy investigations, facilitating the breach analysis and notification process, and overseeing the enterprise-wide privacy program awareness campaign, in addition to many compliance responsibilities.
Prior to joining CenterLight, Ms. Weatherly served as the Assistant Manager, Compliance and Privacy Analyst for MetroPlus Health Plan, a New York Medicaid and Medicare Managed Care Organization and subsidiary of the New York City Health and Hospitals Corporation.
Ms. Weatherly is a licensed attorney in the State of New York and holds a Juris Doctor from The Benjamin N. Cardozo School of Law in NYC and a Bachelor of Arts degree in Journalism and Communications from The Pennsylvania State University. She is Certified in Healthcare Compliance (CHC) and Certified in Healthcare Privacy Compliance (CHPC) from the Compliance Certification Board (CCB) and is a member of the Health Care Compliance Association (HCCA).
Ms. Weatherly is also a professional baker and currently operates a freelance baking company in New York.
Scott Weinstein, JD
Presidential Management Fellow
Office of the National Coordinator, U.S. Health & Human Services
Mr. Weinstein is a Presidential Management Fellow in the Office of the Chief Privacy Officer in the Department of Health and Human Services. He is currently on a 6 month rotational assignment at the White House Office of National Drug Control Policy. He was the project manager for the Data Segmentation for Privacy Initiative, which identified an interoperable, standards-based way of enforcing granular disclosure policies. Mr. Weinstein earned a Juris Doctorate at The George Washington University Law School and a Graduate Certificate in Health Policy at The George Washington University School of Public Health and Health Services. While at graduate school, Mr. Weinstein was a research assistant in The George Washington University Department of Health Policy and provided research assistance for two white papers on patient privacy: Consumer Consent Options for Electronic Health Information Exchange: Policy Considerations and Analysis and Data Segmentation In Electronic Health Information Exchange: Policy Considerations and Analysis. Mr. Weinstein earned his bachelor's degree at Georgetown University.
Program Director, Healthcare & Life Sciences
David Wiggin is the Program Director, Healthcare and Life Sciences, for Teradata Corporation. His responsibilities include global industry strategy, marketing, offer development and field enablement and support. He is also a faculty member with the International Institute for Analytics, Health Care Analytics Research Council, and a regular speaker at Duke University Health Sector events.
Prior to joining Teradata, David was with the healthcare business of Thomson Reuters, now Truven Health Analytics, for 25 years, supporting employer, health plan, provider and government markets. He has worked in a variety of roles including product management, product development, project management, data warehousing, operations management, and systems architecture. David has experience with both the business and IT dimensions of the healthcare industry and is a frequent industry speaker.
David has also held executive and management positions at Stern Stewart & Co. and Exxon Corporation.
David received a BS degree from Ithaca College and earned his MBA from the State University of New York at Albany.