2013 Health Privacy Summit

2nd International Summit on the Future of Health Privacy
Is There an American Health Privacy Crisis?

Louis D. Brandeis Privacy Awards

Patient Privacy Rights presented the first "Louis D. Brandeis Privacy Awards" at the 2nd International Summit on the Future of Health Privacy in Washington, D.C. on June 6, 2012.

The awards, presented during the Summit’s inaugural “Celebration of Privacy,” recognized four individuals for their significant intellectual, cultural, legal, scholarly, and technical contributions to the field of health information privacy. Standing on the shoulders of Supreme Court Justice Louis D. Brandeis, these four heroes' long and distinguished careers focused on ensuring that the “highest right of civilized man” remains the foundation for all electronic systems and for law and policy governing the use and control of sensitive health information.

We are deeply honored that the family of Louis D. Brandeis placed their trust in us to choose those deserving of an award that exemplifies great achievements in the protection of the most sensitive personal information of all: health information.

The first Louis D. Brandeis Privacy Award winners are:

Ross Anderson, PhD

Introduced by:
Marc Rotenberg

Ross Anderson is a Professor of Security Engineering at Cambridge University and the leading health privacy advocate in the UK. He has been involved in medical safety and privacy for many years having been an adviser to the British Medical Association and the Icelandic Medical Association in the mid-1990’s; chair of the Foundation for Information Policy Research, the UK’s leading Internet policy think-tank, since 1998; and a Special Adviser to the UK Health Committee’s inquiry into the Electronic Patient Record. He has worked tirelessly to press for effective health data privacy and security in the NHS, and his research, such as the report called "DataBase State," has been very influential in the EU and US.

The Honorable Joe Barton

Introduced by:
Frank Pasquale

Congressman Joe Barton of Texas has diligently worked to protect individual privacy rights. As a founding co-chairman of the Congressional Privacy Caucus, he works to preserve the financial and medical privacy of Americans and has been at the forefront of consumer protections for online safety and protections for data privacy and security in the ever-expanding Internet universe. Barton's leadership was instrumental in passing the HITECH Act and the inclusion of key new health data privacy and security protections for all consumers and patients. He personally championed the ban on the sale of protected health information without patient consent in HITECH.

The Honorable Ed Markey

Introduced by:
The Honorable
Richard A. Gephardt.

Congressman Markey is a national leader on technology policy and consumer protection. He served for 20 years as Chair or Ranking Member of the Subcommittee on Telecommunications and the Internet where he was the principal author of many of the laws now governing our nation’s telephone, broadcasting, cable television, wireless, and broadband communications systems. Additionally, he is one of the earliest and strongest leaders for health privacy rights. As Congress began to grapple with the lack of health privacy, he authored model federal legislation known as the TRUST Act, setting a high bar to address gaps in HIPAA. As HITECH was being drafted, he was instrumental in assuring the inclusion of key new health data security and privacy protections for all consumers and patients. He personally championed tough new data security protections requiring technologies like encryption to render data unreadable.

Alan Westin, PhD

Introduced by:
Lawrence O. Gostin

Received by:
Robert R. Belair

Dr. Westin is a leading authority on consumer-privacy public opinion surveys, and in understanding and interpreting the privacy attitudes of the Americanpublic. He has worked with Louis Harris & Associates (now Harris Interactive) and Opinion Research Corporation (ORC) on over 60 national privacy surveys since 1978. Dr. Westin is the author or editor of 26 books on constitutional law, civil liberties and American politics, and privacy. He is the nation's most respected academic authority on public attitudes toward health privacy. For over two decades his extensive, thoughtful surveys and body of work on health privacy have been the sine qua non for understanding the American public's views about personal control over health information in electronic healthsystems, the trustworthiness of electronic systems, who patients trust to control the use of personal health information, research use of health data without consent, and how vulnerable populations view electronic health systems and data privacy.

Celebration of Privacy

See the full Celebration of Privacy below. Deborah C. Peel, MD, Founder & Chair of Patient Privacy Rights, introduces the event, followed by the debut of TheDataMap.org, given by Latanya Sweeney, PhD, from the Harvard University Data Privacy Lab. It is then followed by the Louis D. Brandeis Privacy Awards.

The inaugural "Celebration of Privacy" was sponsored by FairWarning® and Patient Privacy Rights.